The purpose of this study was to develop a family genomic laboratory report designed to
communicate genome sequencing results to parents of children who were participating in a …

The Office of Behavioral and Social Sciences Research (OBSSR) at the National Institutes of
Health opened in 1995 to facilitate the advancement of research on social and behavioral …

In recent years the escalating costs of health care have caused managed care programs to
shift the delivery of pediatric psychological services away from specialized medical centers …

Ethical and practical issues around genetic research are of major international concern, both
in academia and in the public domain. Questions concerning what interventions are …

Thomas Lemke… we should not underestimate the dangers of a new eugenics. If biological
tests are used to conform people to rigid institutional norms, we risk reducing social …

Purpose Apolipoprotein-E (APOE) genetic testing to estimate risk for developing late-onset
Alzheimer disease is increasingly being offered without prior genetic counseling or …

This study explored why adult offspring of individuals with Alzheimer's disease (AD) sought
genetic susceptibility testing for AD. Participants (N= 60) were a subset of subjects from the …

Purpose: With the increasing interest in apolipoprotein E (APOE) genetic testing to estimate
the risk of developing late-onset Alzheimer disease, new educational tools are needed to …

Lily Kay, a well-respected scholar of sci-ence studies, died in 2000 at the age of fifty-three
from cancer. The year before, she published Who Wrote the Book of Life?: A History of the …

Moonrise is Penny Wolfson's first-person account of her family, her son Ansel, and his
progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The …