Active involvement of people with intellectual disabilities in health research–A structured literature review

TK Frankena, J Naaldenberg, M Cardol… - Research in …, 2015 - Elsevier
Actively involving people with intellectual disabilities (ID) in health research, also known as
inclusive health research, is increasingly popular. Currently, insight into experiences of this …

The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments

J Rix, HG Carrizosa, J Seale, K Sheehy… - Disability & …, 2020 - Taylor & Francis
This paper reports on the first systematic review of literature associated with participatory
research involving people identified with sensory impairments and/or intellectual …

Nothing about us without us: Does action research in developmental disabilities research measure up?

E Stack, KE McDonald - Journal of Policy and practice in …, 2014 - Wiley Online Library
Action research—research collaborations between professional researchers and community
members to address community concerns—has become increasingly popular in …

Development of an evidence-based practice framework to guide decision making support for people with cognitive impairment due to acquired brain injury or …

J Douglas, C Bigby - Disability and rehabilitation, 2020 - Taylor & Francis
Purpose: At least 5% of people in Australia and the USA have cognitive impairment and
require support for decision-making. This paper details a research program whereby an …

Co‐researching with people who have intellectual disabilities: insights from a national survey

P O'Brien, R McConkey… - Journal of Applied …, 2014 - Wiley Online Library
Background Inclusive research with people with intellectual disabilities is growing
internationally but with few studies examining its feasibility. Methods In undertaking a …

Perceptions of self-efficacy among STEM students with disabilities.

RJ Jenson, AN Petri, AD Day, KZ Truman… - Journal of Postsecondary …, 2011 - ERIC
Numerous studies examine the relationship between self-efficacy and positive outcomes for
postsecondary students. Collectively they echo that self-efficacy is an essential component …

A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research

KE McDonald, AE Schwartz… - … on Intellectual and …, 2023 - meridian.allenpress.com
Provoked by decades of grassroots activism, anti-ableist work is underway to advance
disability rights. Intellectual disability (ID) researchers can integrate these social changes …

Slacktivists or activists? Identity work in the virtual disability march

H Li, D Bora, S Salvi, E Brady - Proceedings of the 2018 CHI conference …, 2018 - dl.acm.org
Protests are important social forms of activism, but can be inaccessible to people with
disabilities. Online activism, like the 2017 Disability March, has provided alternative venues …

Following through to the end: The use of inclusive strategies to analyse and interpret data in participatory action research with individuals with intellectual disabilities

JM Kramer, JC Kramer, E García‐Iriarte… - Journal of applied …, 2011 - Wiley Online Library
Background Scholars have called for research approaches that actively include and are
driven by people with intellectual disabilities, but the process of inclusive data analysis has …

Participatory research: Why and how to involve people in research

D Schubotz - 2019 - torrossa.com
I was approached to write this book by a representative of SAGE shortly after I had given a
presentation at a conference of the European Sociological Association (ESA) on a …