Prevalence of patient partner authorship and acknowledgment in child health research publications: an umbrella review

S Vanderhout, DP Richards, N Butcher… - Journal of Clinical …, 2023 - Elsevier
Objectives Children and families are increasingly involved as equal partners in child health
research, however, considerations around authorship have received little attention and there …

[HTML][HTML] Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review

AP Cooper, L Nguyen, O Irelewuyi, SP Miller - Children, 2024 - mdpi.com
It has become increasingly common for researchers to partner with patients as members of
the research team and collaborate to use their lived experiences to shape research …

Guidelines for reporting pediatric and child health clinical trial protocols and reports: study protocol for SPIRIT-Children and CONSORT-Children

A Baba, M Smith, BK Potter, AW Chan, D Moher… - Trials, 2024 - Springer
Background Despite the critical importance of clinical trials to provide evidence about the
effects of intervention for children and youth, a paucity of published high-quality pediatric …

A decade of efforts to add value to child health research practices

A Sammy, A Baba, TP Klassen, D Moher… - The Journal of …, 2024 - Elsevier
Objective To identify practices that add value to improve the design, conduct, and reporting
of child health research and reduce research waste. Study design In order to categorize the …

[HTML][HTML] Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

J Brogden, Z de Haan, C Gorban, SJ Hockey… - Journal of Medical …, 2024 - jmir.org
Given the rapid development of digital mental health technologies and a focus on
connecting with youth, there is an urgent need to enhance the engagement of young people …

Involvement of children and young people in the conduct of health research: A rapid umbrella review

KA Wyatt, J Bell, J Cooper, L Constable… - Health …, 2024 - Wiley Online Library
Background Patient and public involvement and engagement (PPIE) have long been
considered important to good research practice. There is growing, yet diverse, evidence in …

The League: A person‐centred approach to the development of social robotics for paediatric anxiety

JA Dosso, JN Kailley, JM Robillard - Health Expectations, 2024 - Wiley Online Library
Background Social robots are promising tools to improve the quality of life of children and
youth living with anxiety and should be developed based on the priorities of end users …

'It's Powerful'The impact of involving children and young people in developing paediatric research agendas: A qualitative interview study

L Postma, ML Luchtenberg, AAE Verhagen… - Health …, 2024 - Wiley Online Library
Introduction There is a growing consensus that children and young people (CYP) should be
involved in matters that concern them. Progress is made in involving CYP in developing …

Reducing research participant disparities through use of a co-developed video intervention: A cohort nested pre-post study

S Kellett, JS Rahi, AL Solebo… - … in Medicine & …, 2024 - journals.sagepub.com
Background Evidence on effective approaches for the recruitment of diverse populations
remains limited. This study aimed to assess whether a co-developed study information video …

Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research

L Kim, AM Hermansen, K Cook… - Child: Care, Health and …, 2024 - Wiley Online Library
Background The study aimed to understand the experience of and identify the motivations
for parents participating in health research for their children with medical complexity (CMC) …