Psychosocial implications of rare genetic skin diseases affecting appearance on daily life experiences, emotional state, self-perception and quality of life in adults: a …

H Fournier, N Calcagni, F Morice-Picard… - Orphanet Journal of Rare …, 2023 - Springer
Background Since the beginning of human genetic research, there are very few publications
sharing insights of the negative impact of rare genetic skin diseases (RGSD) on patients' …

Witchcraft‐related abuse and murder of children with albinism in Sub‐Saharan Africa: a conceptual review

J Taylor, C Bradbury‐Jones, P Lund - Child abuse review, 2019 - Wiley Online Library
Babies born with the inherited condition albinism, resulting in reduced melanin pigment in
their hair, skin and eyes, are vulnerable in multiple ways in Africa: as children, as visually …

Albinism, stigma, subjectivity and global-local discourses in Tanzania

G Brocco - Anthropology & medicine, 2016 - Taylor & Francis
Societal ideas and explanations of albinism at the local level in Tanzania are conceived in
terms of family history, social relations, economic status, moral-religious positions, global …

Beliefs about people with albinism in Uganda: a qualitative study using the Common-Sense Model

C Bradbury-Jones, P Ogik, J Betts, J Taylor, P Lund - PLoS One, 2018 - journals.plos.org
Albinism includes a group of inherited conditions that result in reduced melanin production.
It has been documented across the world, with a high frequency in sub-Saharan Africa …

Disability terminology and the emergence of 'diffability'in Indonesia

S Suharto, P Kuipers, P Dorsett - Disability & society, 2016 - Taylor & Francis
The labelling of disabilities in Indonesian society and legislation has changed over time.
More recently, the grassroots has used the term difabel to allude to the conceptualisation of …

Caregivers' and parents' explanatory models of intellectual disability in Khayelitsha, Cape Town, South Africa

S Mkabile, L Swartz - Journal of Applied Research in …, 2020 - Wiley Online Library
Background Post‐apartheid, understanding and management of intellectual disability
remain poor in South Africa, complicated by various contextual and cultural explanations …

Anti-oppressive social work practice

P Tedam - 2020 - torrossa.com
It gives me great pleasure to present Anti-Oppressive Social Work Practice. Writing this book
has not been an easy task, not least for the fact that I emigrated to the United Arab Emirates …

Albinism, spiritual and cultural practices, and implications for health, healthcare, and human rights: A scoping review

S Reimer-Kirkham, B Astle, I Ero, K Panchuk… - Disability & …, 2019 - Taylor & Francis
Persons with albinism–a disability found worldwide–are particularly at risk for human rights
violations in Africa. The purpose of this scoping review was to establish the current state of …

The myth of universal education in rural Zimbabwe: Evidence of challenges faced by pupils with albinism

M Anotida, GG Dadirai, S Sneddon, N Nyasha… - International Journal of …, 2024 - Elsevier
The lives of children with albinism have not given much attention in the scholarly literature,
in particular school-aged children with albinism. The study investigated the challenges faced …

Exploring the experiences of persons living with albinism in Ghana

AK Daklo, OS Obadire - Cogent Education, 2024 - Taylor & Francis
Albinism is typically misunderstood, resulting in myths and misconceptions about the
condition in different parts of the world. This study explores the misconceptions about …