Understanding the patient privacy perspective on health information exchange: a systematic review

N Shen, T Bernier, L Sequeira, J Strauss… - International journal of …, 2019 - Elsevier
Background Health information exchange (HIE), the ability for health information technology
(HIT) to share patient data, can improve the efficiency and effectiveness of healthcare; …

[HTML][HTML] Views, use, and experiences of web-based access to pediatric electronic health records for children, adolescents, and parents: scoping review

J Hagström, C Blease, B Haage, I Scandurra… - Journal of Medical …, 2022 - jmir.org
Background Ongoing efforts worldwide to provide patients with patient-accessible electronic
health records (PAEHRs) have led to variability in adolescent and parental access across …

Who isn't using patient portals and why? Evidence and implications from a national sample of US adults

DL Anthony, C Campos-Castillo, PS Lim - Health Affairs, 2018 - healthaffairs.org
Patient portals that provide secure online access to medical record information and provider
communication can improve health care. Yet new technologies can exacerbate existing …

[HTML][HTML] Discrimination, trust, and withholding information from providers: Implications for missing data and inequity

P Nong, A Williamson, D Anthony, J Platt… - SSM-Population Health, 2022 - Elsevier
Quality care requires collaborative communication, information exchange, and decision-
making between patients and providers. Complete and accurate data about patients and …

Health IT, hacking, and cybersecurity: national trends in data breaches of protected health information

JG Ronquillo, J Erik Winterholler, K Cwikla… - JAMIA …, 2018 - academic.oup.com
Objective The rapid adoption of health information technology (IT) coupled with growing
reports of ransomware, and hacking has made cybersecurity a priority in health care. This …

Disparities in patient portal access by US adults before and during the COVID-19 pandemic

A Nishii, C Campos-Castillo, D Anthony - JAMIA open, 2022 - academic.oup.com
Objective Online patient portals become important during disruptions to in-person health
care, like when cases of coronavirus disease 2019 (COVID-19) and other respiratory viruses …

Factors affecting willingness to share electronic health data among California consumers

KK Kim, P Sankar, MD Wilson, SC Haynes - BMC medical ethics, 2017 - Springer
Background Robust technology infrastructure is needed to enable learning health care
systems to improve quality, access, and cost. Such infrastructure relies on the trust and …

Toward a sociology of privacy

D Anthony, C Campos-Castillo… - Annual review of …, 2017 - annualreviews.org
What are, and what should be, the boundaries between self and society, individuals and
groups? To address these questions, we synthesize research on privacy that is relevant for …

Frequency, predictors, and medical record documentation of chemical coping among advanced cancer patients

JH Kwon, K Tanco, JC Park, A Wong, L Seo… - The …, 2015 - academic.oup.com
Background. In this prospective study, we determined the frequency of opioid-related
chemical coping among advanced cancer patients, as diagnosed by palliative medicine …

“To protect my health or to protect my health privacy?” A mixed‐methods investigation of the privacy paradox

G Fox - Journal of the Association for Information Science and …, 2020 - Wiley Online Library
This paper examines the role of privacy in the health context by investigating the influence of
privacy concerns and perceived benefits on individuals' acceptance of health technologies …