Implications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures

R Sawatzky, JY Kwon, R Barclay, C Chauhan… - Quality of Life …, 2021 - Springer
Purpose Results of patient-reported outcome measures (PROMs) are increasingly used to
inform healthcare decision-making. Research has shown that response shift can impact …

Questionnaire validation practice within a theoretical framework: a systematic descriptive literature review of health literacy assessments

M Hawkins, GR Elsworth, E Hoban, RH Osborne - BMJ open, 2020 - bmjopen.bmj.com
Objective Validity refers to the extent to which evidence and theory support the adequacy
and appropriateness of inferences based on score interpretations. The health sector is …

Translation method is validity evidence for construct equivalence: analysis of secondary data routinely collected during translations of the Health Literacy …

M Hawkins, C Cheng, GR Elsworth… - BMC medical research …, 2020 - Springer
Background Cross-cultural research with patient-reported outcomes measures (PROMs)
assumes that the PROM in the target language will measure the same construct in the same …

Validity arguments for patient-reported outcomes: justifying the intended interpretation and use of data

M Hawkins, GR Elsworth, S Nolte… - Journal of Patient-Reported …, 2021 - Springer
Background Contrary to common usage in the health sciences, the term “valid” refers not to
the properties of a measurement instrument but to the extent to which data-derived …

“Numbers call for action, personalized narratives provide support and recognition”: a qualitative assessment of cancer patients' perspectives on patient-reported …

E Boomstra, S Hommes, RD Vromans… - Journal of Cancer …, 2024 - Springer
Purpose Patient-reported outcome measures (PROMs) are questionnaires completed by
patients to gain insight in their health-related quality of life. However, patients often find the …

Distinct Constructs Underlie Patient‐Reported and Performance‐Rated Outcomes after Stroke

JA DiCarlo, A Jaywant, P Gochyyev… - Annals of …, 2025 - Wiley Online Library
Objective Patient‐reported outcome measures (PROMs), which capture patients'
perspectives on the consequences of health and disease, are widely used in neurological …

Response shift in results of patient-reported outcome measures: a commentary to The Response Shift—in Sync Working Group initiative

MAG Sprangers, T Sajobi, A Vanier, NE Mayo… - Quality of Life …, 2021 - Springer
Abstract Purpose The Working Group undertook a critical, comprehensive synthesis of the
response shift work to date. We aimed to (1) describe the rationale for this initiative;(2) …

Using feedback tools to enhance the quality and experience of care

JR Boehnke, C Rutherford - Quality of Life Research, 2021 - Springer
In 2019, we issued a call for papers interested in approaches to data-based feedback
mechanisms to enhance quality and experience of care, focusing on (health-related) quality …

A philosophical perspective on the development and application of patient-reported outcomes measures (PROMs)

KA Meadows - Quality of Life Research, 2022 - Springer
Questionnaires are a common method in healthcare and clinical research to collect self-
reported data on patients' behaviour and outcomes rather than the clinician's perspective. As …

Commentary: Without Values, Complexity is Reduced to Mathematics

T Greenhalgh - Journal of Evaluation in Clinical Practice, 2025 - Wiley Online Library
This commentary on Sturmberg and Mercuri's paper 'Every Problem is Embedded in a
Greater Whole'[1] argues that those authors have approached complexity from a largely …