The EORTC QLQ‐C30 summary score as prognostic factor for survival of patients with cancer in the “real‐world”: Results from the population‐based PROFILES …

O Husson, BH de Rooij, J Kieffer, S Oerlemans… - The …, 2020 - academic.oup.com
Background Health‐related quality of life (HRQoL) has been shown to be a prognostic factor
for cancer survival in randomized clinical trials and observational “real‐world” cohort …

The effects of patient-reported outcome screening on the survival of people with cancer: a systematic review and meta-analysis

C Caminiti, G Maglietta, F Diodati, M Puntoni… - Cancers, 2022 - mdpi.com
Simple Summary Patient-reported outcomes (PROs) are information collected directly from
patients regarding their health status. Emerging evidence has suggested that integrating …

Symptom clusters in 1330 survivors of 7 cancer types from the PROFILES registry: a network analysis

BH de Rooij, S Oerlemans, K van Deun, F Mols… - Cancer, 2021 - Wiley Online Library
Background Research into the clustering of symptoms may improve the understanding of the
underlying mechanisms that affect survivors' symptom burden. This study applied network …

[HTML][HTML] Sex-differences in symptoms and functioning in> 5000 cancer survivors: results from the PROFILES registry

S Oertelt-Prigione, BH de Rooij, F Mols… - European Journal of …, 2021 - Elsevier
Background Previous reports highlight the greater number of side effects that women
experience during cancer treatment, but little is known about sex differences in symptoms …

[HTML][HTML] Multicenter randomized controlled trial to evaluate the efficacy and tolerability of frozen gloves for the prevention of chemotherapy-induced peripheral …

AJM Beijers, CS Bonhof, F Mols, J Ophorst… - Annals of …, 2020 - Elsevier
Background This study investigated the efficacy and tolerability of wearing frozen gloves
(FGs) during chemotherapy to prevent chemotherapy-induced peripheral neuropathy (CIPN) …

The impact of health symptoms on health-related quality of life in early-stage breast cancer survivors

KM De Ligt, M Heins, J Verloop, NPM Ezendam… - Breast cancer research …, 2019 - Springer
Purpose In breast cancer patients, treatment-related health symptoms can occur that may
affect their health-related quality of life (HRQoL). This study aimed to determine the impact of …

Current trends and outcomes in cellular therapy activity in the United States, including prospective patient-reported outcomes data collection in the Center for …

R Cusatis, C Litovich, Z Feng, M Allbee-Johnson… - … and Cellular Therapy, 2024 - Elsevier
ABSTRACT The Center for International Blood and Marrow Transplant Research (CIBMTR)
prepares an annual set of summary slides to summarize the trends in transplantation and …

Recruiting adolescent and young adult cancer survivors for patient-reported outcome research: experiences and sample characteristics of the SURVAYA study

C Vlooswijk, LV Poll-Franse, SHM Janssen… - Current …, 2022 - mdpi.com
Background: Participation of Adolescents and Young Adults with cancer (AYAs: 18–39 years
at time of diagnosis) in patient-reported outcome studies is warranted given the limited …

Review of response rates over time in registry-based studies using patient-reported outcome measures

K Wang, CN Eftang, RB Jakobsen, A Årøen - BMJ open, 2020 - bmjopen.bmj.com
Objectives Gain an overview of expected response rates (RRs) to patient-reported outcome
measures (PROMs) in clinical quality registry-based studies and long-term cohorts in order …

Deep learning for cancer symptoms monitoring on the basis of electronic health record unstructured clinical notes

C Lindvall, CY Deng, ND Agaronnik, A Kwok… - JCO Clinical Cancer …, 2022 - ascopubs.org
PURPOSE Symptoms are vital outcomes for cancer clinical trials, observational research,
and population-level surveillance. Patient-reported outcomes (PROs) are valuable for …