Systemic sclerosis (SSc) is an orphan disease characterised by autoimmunity, fibrosis of the
skin and internal organs, and vasculopathy. SSc may be associated with high morbidity and …

Systemic sclerosis (SSc) is a heterogeneous multisystem autoimmune disease whereby its
main pathological drivers of disability and damage are vascular injury, inflammatory cell …

Objective Patient engagement is critical to clinical practice guideline (CPG) development.
This work presents our approach to ascertaining patients' values and preferences to inform …

Objective Supported self‐management interventions for individuals with systemic sclerosis
(SSc) are needed. We examined the effects of a 12‐week resilience‐building energy …

Objective Fatigue is consistently ranked as one of the most problematic symptoms of
systemic sclerosis (SSc), but the impact of fatigue on daily life is not well characterized. The …

Objective The Systemic Lupus International Collaborating Clinics (SLICC), American
College of Rheumatology (ACR), and the Lupus Foundation of America are developing a …

Objectives To identify the themes to inform the content of a new generic measure, the EQ
Health and Wellbeing (EQ-HWB), that can be used in economic evaluation across health …

Abstract Background Systemic sclerosis (SSc) is a chronic connective-tissue disease
responsible for reduced life expectancy, disability and a decreased quality of life. In order to …

Recent studies support the previously established positive associations between
environmental factors and most of the autoimmune diseases. Nevertheless, further studies …

Objectives Limited cutaneous systemic sclerosis (lcSSc) is the largest subgroup of people
with SSc, but little is known about symptom experience from the patients' perspective. This …