Parental bereavement–impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review

PS Vig, JY Lim, RWL Lee, H Huang, XH Tan, WQ Lim… - BMC palliative …, 2021 - Springer
Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Guidance for pediatric end-of-life care

JS Linebarger, V Johnson, RD Boss - Pediatrics, 2022 - publications.aap.org
Background Some pediatric deaths happen within minutes to days of the cause (eg,
unintentional injury, extremely preterm birth, catastrophic illness). Others occur days to years …

Mixed‐methods analysis of decisional regret in parents following a child's death from cancer

D Feifer, EG Broden, N Xiong, E Mazzola… - Pediatric Blood & …, 2023 - Wiley Online Library
Background and objectives Decisional regret is common in bereaved parents. We aimed to
identify factors associated with and to explain patterns of parental decisional regret. Methods …

Palliative care in paediatric oncology: an update

N Salins, S Hughes, N Preston - Current oncology reports, 2022 - Springer
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …

Current grief support in pediatric palliative care

T Schuelke, C Crawford, R Kentor, H Eppelheimer… - Children, 2021 - mdpi.com
Grief support changes as more is learned from current grief theory and research. The
authors provide a comprehensive overview of current grief support as it relates to Pediatric …

The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life

EG Broden, E Mazzola, DD DeCourcey… - Journal of Pediatric …, 2023 - Elsevier
Purpose Parents' perceptions of their child's suffering affect their bereavement experience.
Identifying factors that shape parental perceptions of suffering could help build effective …

Symptoms and suffering at end of life for children with complex chronic conditions

KL Marcus, PC Kao, C Ma, J Wolfe… - Journal of Pain and …, 2022 - Elsevier
Context Children with cancer and cardiac disease suffer with high symptom burden at end of
life (EOL). Little is known about the EOL experience for children with other complex chronic …

Location of end‐of‐life care of children with cancer: A systematic review of parent experiences

M Noyes, A Herbert, S Moloney, H Irving… - Pediatric blood & …, 2022 - Wiley Online Library
Objective To synthesize existing qualitative research exploring the experiences of parents
caring for children with cancer during the end‐of‐life phase, and the factors that influence …

Bereaved parent preferences on quality end‐of‐life care for children with cancer in the South

I Martinez, E Currie, ES Davis, R Kumar, V Lawhon… - Cancer, 2024 - Wiley Online Library
Purpose The authors sought to understand bereaved family preferences for end‐of‐life
(EOL) care, particularly among Black families and those in the South. Methods Semi …