The COMET handbook: version 1.0

PR Williamson, DG Altman, H Bagley, KL Barnes… - Trials, 2017 - Springer
The selection of appropriate outcomes is crucial when designing clinical trials in order to
compare the effects of different interventions directly. For the findings to influence policy and …

Symptoms and concerns among children and young people with life-limiting and life-threatening conditions: a systematic review highlighting meaningful health …

E Namisango, K Bristowe, MJ Allsop… - The Patient-Patient …, 2019 - Springer
Background The design and provision of quality pediatric palliative care should prioritize
issues that matter to children and their families for optimal outcomes. Objective This review …

The use of qualitative methods to inform Delphi surveys in core outcome set development

T Keeley, P Williamson, P Callery, LL Jones, J Mathers… - Trials, 2016 - Springer
Background Core outcome sets (COS) help to minimise bias in trials and facilitate evidence
synthesis. Delphi surveys are increasingly being used as part of a wider process to reach …

Parents suggest which indicators of progress and outcomes should be measured in young children with autism spectrum disorder

H McConachie, N Livingstone, C Morris… - Journal of autism and …, 2018 - Springer
Abstract Evaluation of interventions for children with autism spectrum disorder (ASD) is
hampered by the multitude of outcomes measured and tools used. Measurement in research …

The Autism Family Experience Questionnaire (AFEQ): An ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes …

K Leadbitter, C Aldred, H McConachie… - Journal of Autism and …, 2018 - Springer
There is a lack of measures that reflect the intervention priorities of parents of children with
autism spectrum disorder (ASD) and that assess the impact of interventions on family …

Assessing the engagement of children and families in selecting patient-reported outcomes (PROs) and developing their measures: a systematic review

M McNeill, S Noyek, E Engeda, N Fayed - Quality of Life Research, 2021 - Springer
Purpose To assess child and family engagement in the selection of patient-reported
outcomes for clinical studies/clinical settings and development of patient-reported outcome …

Core outcome set for uncomplicated acute appendicitis in children and young people

FC Sherratt, BSR Allin, JJ Kirkham… - Journal of British …, 2020 - academic.oup.com
Background Research studies to inform clinical practice and policy in children and young
people with appendicitis are hampered by inconsistent selection and reporting of outcomes …

A review of patient and carer participation and the use of qualitative research in the development of core outcome sets

JE Jones, LL Jones, TJH Keeley, MJ Calvert… - PLoS …, 2017 - journals.plos.org
Background To be meaningful, a core outcome set (COS) should be relevant to all
stakeholders including patients and carers. This review aimed to explore the methods by …

Youth positive mental health concepts and definitions: a systematic review and qualitative synthesis

JA Vaingankar, M Subramaniam, E Seow… - International journal of …, 2022 - mdpi.com
Background: Research on youth positive mental health (PMH) lacks comprehensiveness.
We reviewed literature to (i) identify and understand concepts related to youth PMH and (ii) …

Melatonin in neurodevelopmental disorders: a critical literature review

C Feybesse, S Chokron, S Tordjman - Antioxidants, 2023 - mdpi.com
The article presents a review of the relationships between melatonin and
neurodevelopmental disorders. First, the antioxidant properties of melatonin and its …