'You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of …

MJ Tatterton, MJ Fisher - Palliative Medicine, 2023 - journals.sagepub.com
Background: Parents of babies diagnosed with life limiting conditions in the perinatal period
face numerous challenges. Considerations include the remainder of the pregnancy, delivery …

Components of perinatal palliative care: an integrative review

L Dombrecht, K Chambaere, K Beernaert, E Roets… - Children, 2023 - mdpi.com
When a severe diagnosis is made before or after birth, perinatal palliative care (PPC) can be
provided to support the infant, parents and involved healthcare providers. An integrative and …

“Holding Families in Uncertainty”: A Framework Analysis of the Role and Impact of Children's Hospices in the Provision of Perinatal Palliative Care

MJ Tatterton, MJ Fisher, H Storton… - Illness, Crisis & …, 2025 - journals.sagepub.com
There is growing international evidence of the benefits of early perinatal palliative care for
babies and their families. Despite this, inconsistency remains in ways care is provided by …

Clinical Experiences of Perinatal Palliative Care After a Stillbirth: A Narrative Therapy for Grief

Y Liu, X Yang, X Zhu, X Tian… - American Journal of …, 2024 - journals.sagepub.com
Narrative care for families suffering from perinatal loss is rarely provided by medical
institutions in China Mainland. However, with the advancement of the Chinese narrative …

La humanización: la mejor opción para los cuidados paliativos

GR Loyola - Gaceta Médica de Caracas, 2024 - saber.ucv.ve
Resumen Los Cuidados Paliativos (CP) se muestran como un planteamiento para mejorar
la calidad de vida de los pacientes y familias que afrontan problemas inherentes a una …

Accessibility and challenges of perinatal palliative care in Poland

U Tataj-Puzyna, B Szlendak, I Kaptacz… - … Medicine in Practice, 2023 - journals.viamedica.pl
Background: This article examines the legal status and level of accessibility to perinatal
palliative care (PPC) in Poland, with a focus on the number of services provided and the …

The Experiences of Midwives Who Attend Births by Women with Life-Limiting Fetal Conditions (LLFC): A Phenomenological Research Study

U Tataj-Puzyna, K Heland-Kurzak, D Sys, B Szlendak… - Healthcare, 2023 - mdpi.com
Providing care to a woman after a Life-Limiting Fetal Conditions (LLFC) diagnosis is a
difficult experience for midwives. This study's aim is to describe the experience of midwives …

叙事哀伤照护赋能围产期临床人文关爱实践

杨志芬, 杜丽佳, 柳云, 杨晓霖 - 医学与哲学, 2023 - yizhe.dmu.edu.cn
安宁疗护和哀伤辅导是叙事医学的重要维度. 以中国叙事医学理念为框架,
围绕一则死胎家庭的围产期叙事照护及叙事哀伤辅导案例, 阐述围产期丧失造成的哀伤剥夺如何 …

孕育生命受限胎儿的围产期预立照护计划

李沛窈, 余琴, 苟玉琦, 彭静涵, 刘梦婕 - 医学与哲学, 2022 - yizhe.dmu.edu.cn
通过对国外孕育生命受限胎儿的围产期预立照护计划的研究现状进行文献综述,
为我国围产期安宁疗护的发展提供参考. 当发现胎儿生命受限时, 围产期预立照护计划成为了 …

[HTML][HTML] Cuidados paliativos perinatales: un abordaje integral

IA Ricaud Vélez, I Hanhausen Estrada… - Medicina y …, 2024 - scielo.org.mx
Los cuidados paliativos perinatales surgieron como una medida esencial para abordar
integralmente el tratamiento de pacientes neonatales con diagnósticos prenatales o …