[HTML][HTML] Review of methods for estimating the prevalence of rare diseases

N Venugopal, G Naik, K Jayanna… - Rare Disease and …, 2024 - oaepublish.com
One of the main challenges in rare diseases is the unavailability of reliable estimates of
prevalence and incidence. The lack of epidemiological data makes planning for therapeutic …

Cross-border rare disease advocacy: Preethi Krishnaraj interviews Harsha Rajasimha

P Krishnaraj, HK Rajasimha - Disease Models & …, 2024 - journals.biologists.com
Rare diseases affect only a few people in a given population but, collectively, they impact
over 400 million people globally (Nguengang Wakap et al., 2020). It is estimated that there …