Problem Despite reporting significant systemic barriers to providing care, burden among
parental caregivers of children with medical complexity (CMC) is often attributed to stressors …

Importance Families of children with medical complexity (CMC) report barriers to accessing
affordable coverage for the full range of services their children may need to optimize their …

Savannah is now sitting in the interview room of an inpatient psychiatric unit after a suicide
attempt via an opiate overdose. Savannah has been struggling for some time with her …

Objective The objective of this Clinical Update is to review the principles, structures,
processes, and outcomes of community systems of care as they pertain to the delivery of …

Background Children, adolescents, and young adults with hematologic malignancies tend to
receive high‐intensity end‐of‐life care (HI‐EOLC), but sociodemographic and hospital …

Objective Parents of children with special health care needs (CSHCN) report that private
insurance is less adequate than public health coverage. Parents of CSHCN with emotional …

Objective Parents of children with medical complexity experience substantial financial
burdens. It is unclear how neonatal intensive care unit (NICU) clinicians prepare new …

For many children with significant behavioral health needs, the inability to obtain funding for
adequate behavioral health care through private means results in parents “voluntarily” …

Background Among nearly 400,000 children in US foster care, an estimated 10% are
medically complex. Yet, population-level data about children with medical complexity (CMC) …

Objective: We examined characteristics associated with receiving the North Carolina Home
and Community-Based Services Waiver for intellectual and developmental disabilities …