Health related quality of life of caregivers of children and adolescents with phenylketonuria: a systematic review

D Shaji Thomas, D KY… - Global Pediatric Health, 2021 - journals.sagepub.com
Introduction. Caregivers of children with chronic illness are at risk of having impairment in
their quality of life (QOL). We systematically reviewed the available literature related to the …

Life story of Iranian parents of a child with phenylketonuria: a qualitative study

M Mardani-Hamooleh, H Heidari - Journal of Community Genetics, 2023 - Springer
Parents of a child with phenylketonuria (PKU) face many challenges in childcare. It is crucial
for health care workers to understand the situation of parents of a child with PKU and their …

[HTML][HTML] The effects of a self-learning package on mothers' knowledge and practices towards caring for their children with phenylketonuria

A Khalil, E Amin, SSE Alrafay… - Journal of Medicine and …, 2023 - ncbi.nlm.nih.gov
The objective of this study was to evaluate the effect of a self-learning package on mothers'
knowledge and practices towards caring for their children with phenylketonuria. A pre/post …

Effect of Online Education on Mothers' Knowledge and Practice regarding Caring for Children with Phenylketonuria

N Ramadan Esmail Magor… - Egyptian Journal of …, 2023 - journals.ekb.eg
Background: Phenylalanine hydroxylase activity is deficient in phenylketonuria.
Phenylketonuria is an inherited metabolic disease of protein metabolism. Aim: The study …