Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice

KE Dengsø, ST Lindholm, SF Herling… - Research Involvement …, 2023 - Springer
Background Over the past decades, there has been a growing international interest in user
involvement in healthcare research. However, evidence on the management and impact of …

Optimising healthcare transition of adolescents and young adults to adult care: a perspective statement of the Italian Society of Obesity

A Morandi, GR Umano, A Vania, V Gugliemi… - Eating and Weight …, 2024 - Springer
The transition to adult health care (HCT, Health Care Transition), is the purposeful, planned
movement of patients from paediatric to adult services. For the adolescent living with obesity …

Transition readiness and anxiety among adolescents with a chronic condition and their parents: A cross‐sectional international study

A Tornivuori, M Kallio, E Culnane… - Journal of Advanced …, 2024 - Wiley Online Library
Aims To evaluate associations of age, transition readiness and anxiety in adolescents with
chronic conditions and to compare perceptions of adolescents and their parents regarding …

A comprehensive transfer program from pediatrics to adult care for parents of adolescents with chronic illness (ParTNerSTEPs): study protocol for a randomized …

EL Thomsen, KA Boisen, S Hanghøj, H Hansson… - Trials, 2022 - Springer
Background Previous research shows that adolescents with a chronic illness have more
successful transfers to adult care if their parents are involved during the transition. However …

When care hurts: parents' experiences of caring for a child with epidermolysis bullosa

E Daae, KB Feragen, T Naerland… - Orphanet Journal of Rare …, 2024 - Springer
Background Epidermolysis bullosa (EB) comprises a group of genetically and clinically
heterogeneous diseases characterized by skin fragility and blistering. EB is incurable, and …

Application of the Medical Research Council guidance for complex interventions in the development of VIeSA, an intervention to support healthy ageing among …

EM Ashikali, C Ludwig, C Graf, I Ionita, C Busnel - BMC geriatrics, 2024 - Springer
Background The ageing population, coupled with the desire to age-in-place, highlight the
need for programs that target health promotion as a means of maintaining functional ability …

Nurses' and physicians' perspectives on implementation barriers and facilitators in a transfer program for parents of adolescents with chronic illness

EL Thomsen, JC Koppelhus, KA Boisen… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To identify barriers and facilitators impacting the implementation of a comprehensive
transfer program aimed at parents of adolescents with chronic illness in clinical practice …

The roles and experiences of adolescents with cystic fibrosis and their parents during transition: A qualitative interview study

KV Wyngaert, S Debulpaep, W Van Biesen… - Journal of Cystic …, 2024 - Elsevier
Abstract Purpose Inadequate participation of Adolescents and Young Adults (AYAs) and
parents are well-established barriers of transition. Shifts in roles are mandatory with …

Emerging Adults With Type 2 Diabetes: Understanding Illness Experience and Transition to Adult Care

EK Edmondson, SM Garcia, EF Gregory… - Journal of Adolescent …, 2024 - Elsevier
Purpose Youth-onset type 2 diabetes (T2D) is increasingly common and is often diagnosed
shortly before transition from pediatric to adult care. Little is known about the experience of …

La transition des soins pour les adolescents vivant avec une maladie chronique.

P Jacquin, H Mellerio - Médecine Thérapeutique: Pédiatrie, 2022 - search.ebscohost.com
Le passage de la pédiatrie à la médecine pour adultes est une étape essentielle pour les
adolescents et jeunes adultes (AJA) vivant avec une maladie chronique. Il comporte un …