Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis

S White, A O'Cathain, V Halliday, L Croot… - Health …, 2023 - Wiley Online Library
Background People with motor neuron disease (pwMND) are routinely offered gastrostomy
feeding tube placement and (non‐invasive and invasive) ventilation to manage the …

A qualitative systematic review of family caregivers' experiences of artificial nutrition and hydration at home: A meta‐ethnography

D Lisiecka, Á Kearns, A Bonass - International Journal of …, 2022 - Wiley Online Library
Background Artificial nutrition and hydration (AN&H) may be provided to individuals in the
home environment, and family caregivers are often involved in the management of this …

Accessing and Receiving Speech-Language Pathology Services at the Multidisciplinary Amyotrophic Lateral Sclerosis Clinic: An Exploratory Qualitative Study of …

A Huynh, K Adams, C Barnett-Tapia, S Kalra… - Journal of Speech …, 2023 - ASHA
Purpose: This study sought to explore how patients with amyotrophic lateral sclerosis (ALS)
presenting with coexisting bulbar and cognitive impairments and their caregivers …

Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice …

S White, A O'Cathain, V Halliday… - … Lateral Sclerosis and …, 2024 - Taylor & Francis
Objective Understand the practice and beliefs of healthcare professionals (HCPs)
supporting the decision-making of people with MND (pwMND) about gastrostomy …