Molecular genetic testing and the future of clinical genomics

SH Katsanis, N Katsanis - Nature Reviews Genetics, 2013 - nature.com
Genomic technologies are reaching the point of being able to detect genetic variation in
patients at high accuracy and reduced cost, offering the promise of fundamentally altering …

Canadian Association of Radiologists white paper on ethical and legal issues related to artificial intelligence in radiology

Canadian Association of Radiologists … - Canadian …, 2019 - journals.sagepub.com
Artificial intelligence (AI) software that analyzes medical images is becoming increasingly
prevalent. Unlike earlier generations of AI software, which relied on expert knowledge to …

The digitization of healthcare: boundary risks, emotion, and consumer willingness to disclose personal health information

CL Anderson, R Agarwal - Information systems research, 2011 - pubsonline.informs.org
As healthcare becomes increasingly digitized, the promise of improved care enabled by
technological advances inevitably must be traded off against any unintended negative …

[HTML][HTML] Patient perspectives on sharing anonymized personal health data using a digital system for dynamic consent and research feedback: a qualitative study

K Spencer, C Sanders, EA Whitley, D Lund… - Journal of medical …, 2016 - jmir.org
Background: Electronic health records are widely acknowledged to provide an important
opportunity to anonymize patient-level health care data and collate across populations to …

Public preferences about secondary uses of electronic health information

D Grande, N Mitra, A Shah, F Wan… - JAMA internal …, 2013 - jamanetwork.com
Importance As health information technology grows, secondary uses of personal health
information offer promise in advancing research, public health, and health care. Public …

Comparison of consumers' views on electronic data sharing for healthcare and research

KK Kim, JG Joseph… - Journal of the American …, 2015 - academic.oup.com
New models of healthcare delivery such as accountable care organizations and patient-
centered medical homes seek to improve quality, access, and cost. They rely on a robust …

[HTML][HTML] Factors affecting recruitment into depression trials: systematic review, meta-synthesis and conceptual framework

A Hughes-Morley, B Young, W Waheed, N Small… - Journal of affective …, 2015 - Elsevier
Background Depression is common and clinical trials are crucial for evaluating treatments.
Difficulties in recruiting participants into depression trials are well-documented, yet no study …

“Let's get the best quality research we can”: public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative …

EM Hill, EL Turner, RM Martin, JL Donovan - BMC medical research …, 2013 - Springer
Background Opt-in consent is usually required for research, but is known to introduce
selection bias. This is a particular problem for large scale epidemiological studies using only …

[HTML][HTML] Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK

F Riordan, C Papoutsi, JE Reed, C Marston… - International journal of …, 2015 - Elsevier
Abstract Background The development of Electronic Health Records (EHRs) forms an
integral part of the information strategy for the National Health Service (NHS) in the UK, with …

[HTML][HTML] Sharing medical data for health research: the early personal health record experience

ER Weitzman, L Kaci, KD Mandl - Journal of medical Internet research, 2010 - jmir.org
Background: Engaging consumers in sharing information from personally controlled health
records (PCHRs) for health research may promote goals of improving care and advancing …