User involvement in ageing and health research: a survey of researchers' and older adults' perspectives

M Kylén, B Slaug, O Jonsson, S Iwarsson… - Health Research Policy …, 2022 - Springer
Background User involvement in research has rapidly increased and is often a precondition
to obtain research funding. Benefits such as effectiveness and increased relevance of …

Applying the 'human rights model of disability'to informed consent: Experiences and reflections from the SHAPES project

R Lombard-Vance, E Soye, D Ferri, E McEvoy… - Disabilities, 2023 - mdpi.com
Understanding the complexity of informed consent processes is critically important to the
success of research that requires participants to test, develop, or inform research data and …

Involving frail older patients in identifying outcome measures for transitional care—a feasibility study

TK Hansen, AL Jensen, EM Damsgaard… - Research involvement …, 2021 - Springer
Background During care transitions, the older (75+) patient's agenda can easily be missed.
To counteract this, involving patients in shared clinical decision making has proven to be of …

Professional identity formation of medical students in relation to older persons' healthcare: exploring the views of older persons living in the Netherlands–a qualitative …

A Moll-Jongerius, K Langeveld, J Gussekloo… - BMJ open, 2024 - bmjopen.bmj.com
Objectives Given the growing population of older persons, medical students need to develop
an appropriate professional identity to comply with older persons' healthcare needs. In this …

Development and evaluation of an anti-ageism advisory group with older adults and gerontological experts: a qualitative descriptive study

S Dahlke, JI Butler, K Baskerville, MT Fox… - Research Involvement …, 2024 - Springer
Background In recent years, academics have increasingly acknowledged the importance of
involving health service users and community stakeholders as active partners in health …

[HTML][HTML] Awareness of and attitudes toward user involvement in research on aging and health: protocol for a quantitative large-scale panel study

M Kylén, SM Schmidt, O Jonsson… - JMIR research …, 2020 - researchprotocols.org
Background: User involvement is a requirement of most research funders. There is a
growing body of literature exploring the benefits and challenges of user involvement in …

Exploring patient and public involvement in motor neuron disease research

LS Musson, CJ McDermott… - … Lateral Sclerosis and …, 2019 - Taylor & Francis
Objectives: Patient and public involvement (PPI) is a relatively new practice whereby
researchers involve patients and the public in the conduct of their research. The Sheffield …

Protecting and empowering research with the vulnerable older person

F Poland, L Birt - The SAGE Handbook of Qualitative Research Ethics,) …, 2018 - torrossa.com
The process of biological ageing is an inevitability of old age, however being socially
positioned as a vulnerable, frail older person does not have to be. Recognizing and …

[PDF][PDF] Forskerens perspektiver på patientinddragelse i forskning

NÅRPIF FORSKER, SI VÆRK - Ugeskr Læger, 2018 - content.ugeskriftet.dk
Sundhedsforskning hviler i meget høj grad på patienters medvirken som forsøgspersoner.
Med patientinddragelse i forskning (PPI) udbygges patienternes roller til, at forskning …

[PDF][PDF] Meaningful Involvement in Services in Health and Social Care (MISHSoC): Towards an Inclusive and Effective Public and Patient Engagement Strategy for …

B Carroll, K Walsh, M O'Neill, C De Largy - lenus.ie
There have been increased efforts to engage those with lived experience in the design,
implementation and monitoring of health and social care services, both in Ireland and …