Health‐related quality‐of‐life scales in Parkinson's disease: critique and recommendations

P Martinez‐Martin, M Jeukens‐Visser… - Movement …, 2011 - Wiley Online Library
Health‐related quality of life is an important patient‐reported outcome used in intervention
trials and for monitoring the consequences of health status on physical, mental, and social …

The importance of non-motor disturbances to quality of life in Parkinson's disease

P Martinez-Martin - Journal of the neurological sciences, 2011 - Elsevier
The term health-related quality of life (HRQoL) refers to the consequences of the disease
and treatment on the patients' life, as perceived and evaluated by patients themselves …

Living well with dementia: What is possible and how to promote it

C Quinn, JA Pickett, R Litherland… - … Journal of Geriatric …, 2021 - pmc.ncbi.nlm.nih.gov
Key points The focus on living well with dementia encourages a more positive and
empowering approach The right support can improve the experience of living with dementia …

Quality of life in patients with mild cognitive impairment

H Bárrios, S Narciso, M Guerreiro, J Maroco… - Aging & mental …, 2013 - Taylor & Francis
Background: Quality of life (QoL) is affected in patients with dementia, but it is not clear
whether it is already disturbed in more initial phases of cognitive decline, like Mild Cognitive …

Psychological distress, perceived stigma, and coping among caregivers of patients with schizophrenia

HC Ong, N Ibrahim, S Wahab - Psychology research and behavior …, 2016 - Taylor & Francis
Nowadays, family members are gradually taking on the role of full-time caregivers for
patients suffering from schizophrenia. The increasing burden and tasks of caretaking can …

Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study

HC Beerens, C Sutcliffe, A Renom-Guiteras… - Journal of the American …, 2014 - Elsevier
Objectives To explore how quality of life (QoL) and quality of care (QoC) for people with
dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for PwD …

Measuring the impact of informal elderly caregiving: a systematic review of tools

I Mosquera, I Vergara, I Larrañaga, M Machón… - Quality of Life …, 2016 - Springer
Purpose To classify and identify the main characteristics of the tools used in practice to
assess the impact of elderly caregiving on the informal carers' life. Methods A systematic …

Improving the experience of dementia and enhancing active life-living well with dementia: study protocol for the IDEAL study

L Clare, SM Nelis, C Quinn, A Martyr… - Health and quality of life …, 2014 - Springer
Background Enabling people with dementia and carers to 'live well'with the condition is a
key United Kingdom policy objective. The aim of this project is to identify what helps people …

The use of the EQ-5D as a measure of health-related quality of life in people with dementia and their carers

V Orgeta, RT Edwards, B Hounsome, M Orrell… - Quality of Life …, 2015 - Springer
Purpose To assess the acceptability, validity and inter-rater agreement of self-and family
carer proxy ratings of the EQ-5D as a generic health-related quality of life (HRQOL) …

Inter-rater agreement of the Quality of Life-Alzheimer's Disease (QoL-AD) self-rating and proxy rating scale: Secondary analysis of RightTimePlaceCare data

J Römhild, S Fleischer, G Meyer, A Stephan… - Health and Quality of …, 2018 - Springer
Background To assess the quality of life of people with dementia, measures are required for
self-rating by the person with dementia, and for proxy rating by others. The Quality of Life in …