Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis
JW Mack, J Wolfe - Current opinion in pediatrics, 2006 - journals.lww.com
Early integration of pediatric palliative care: for some chi... : Current Opinion in Pediatrics Early
integration of pediatric palliative care: for some children, palliative care starts at diagnosis …
integration of pediatric palliative care: for some children, palliative care starts at diagnosis …
Outcomes and causes of death in children on home mechanical ventilation via tracheostomy: an institutional and literature review
JD Edwards, SS Kun, TG Keens - The Journal of pediatrics, 2010 - Elsevier
OBJECTIVE: To describe outcomes and causes of death in children on chronic positive-
pressure ventilation via tracheostomy. STUDY DESIGN: We conducted a retrospective …
pressure ventilation via tracheostomy. STUDY DESIGN: We conducted a retrospective …
Chronic illness in pediatric critical care
S Murphy Salem, RJ Graham - Frontiers in Pediatrics, 2021 - frontiersin.org
Children and Youth with Special Healthcare Needs (CYSHCN), children with medical
complexity (CMC), and children with chronic, critical illness (CCI) represent pediatric …
complexity (CMC), and children with chronic, critical illness (CCI) represent pediatric …
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Objectives To describe the patients who received care from the 8 dedicated pediatric
palliative care programs in Canada in 2002 and to estimate the number of children who may …
palliative care programs in Canada in 2002 and to estimate the number of children who may …
A systematic concept analysis of 'technology dependent': challenging the terminology
There are an increasing number of children who are dependent on medical technology to
sustain their lives. Although significant research on this issue is taking place, the terminology …
sustain their lives. Although significant research on this issue is taking place, the terminology …
The impact on family of pediatric chronic respiratory failure in the home
Objective To assess the family impact of managing severe, chronic respiratory failure (CRF)
at home. Better understanding will inform parental counseling and serve as a point of …
at home. Better understanding will inform parental counseling and serve as a point of …
Family-centered assessment and function for children with chronic mechanical respiratory support
Introduction The purpose of this study was to assess health-related quality of life (HRQL)
when managing severe, chronic respiratory insufficiency (CRI) at home. Methods Families …
when managing severe, chronic respiratory insufficiency (CRI) at home. Methods Families …
Parents' views of their child's end-of-life care: subanalysis of primary care involvement
R Goldstein, KP Rimer - Journal of palliative medicine, 2013 - liebertpub.com
Background: The medical literature encourages primary care pediatricians (PCPs) to play a
role in the care of patients who are dying. Actual involvement has not been investigated …
role in the care of patients who are dying. Actual involvement has not been investigated …
Characteristics associated with pediatric inpatient death
AD Slonim, S Khandelwal, J He, M Hall… - …, 2010 - publications.aap.org
OBJECTIVE: The primary objective of this study was to obtain a broad understanding of
inpatient deaths across academic children's hospitals. METHODS: A nonconcurrent cohort …
inpatient deaths across academic children's hospitals. METHODS: A nonconcurrent cohort …
Anticipatory guidance on the risks of unfavorable outcomes among children with medical complexity
JD Edwards - The Journal of pediatrics, 2016 - pmc.ncbi.nlm.nih.gov
Recent decades have seen profound improvements in the care and survival of children with
medical complexity—that is, children with complex chronic conditions (CCC) and functional …
medical complexity—that is, children with complex chronic conditions (CCC) and functional …