Precision medicine and the problem of structural injustice

S Green, B Prainsack, M Sabatello - Medicine, Health Care and …, 2023 - Springer
Many countries currently invest in technologies and data infrastructures to foster precision
medicine (PM), which is hoped to better tailor disease treatment and prevention to individual …

Desiloization and its discontents: the politics of data storage in the age of platformization

NB Thylstrup, M Archer, H Steiner - Information, Communication & …, 2024 - Taylor & Francis
This essay explores how desiloization strategies facilitate the emergence and increasing
centralization of private platform power, rather than flattening and democratizing access to …

Data as relation: Ontological trouble in the data-driven public administration

BR Winthereik - Computer Supported Cooperative Work (CSCW), 2024 - Springer
This paper examines how the intense focus on data in political digitalization strategies takes
effect in practice in a Danish municipality. Building on an ethnographic study of data-driven …

[HTML][HTML] A role-model for data policies? Qualitative study on the governance of health data in Denmark

A Martani, SM Egli, LD Geneviève, BS Elger… - Health Policy and …, 2022 - Elsevier
Objectives Denmark has invested a lot in the branding of its health data landscape as a role
model. We explored to which extent this holds true, with a focus on data access for …

Acceptability of prepayment, social solidarity and cross-subsidies in national health insurance: A mixed methods study in Western Kenya

B Maritim, AD Koon, A Kimaina, J Goudge - Frontiers in Public Health, 2022 - frontiersin.org
Introduction Many low-and middle-income countries are attempting to finance healthcare
through voluntary membership of insurance schemes. This study examined willingness to …

[HTML][HTML] Public value in the making of automated and datafied welfare futures

D Allhutter, A Alushi, RC de Alcântara… - Internet Policy …, 2024 - policyreview.info
Across Europe, the public sector is expanding its efforts to introduce data-driven decision-
support and intelligent systems in the administration of welfare. The growing body of …

'The window of opportunity is closing'—advocating urgency and unity

H Tarkkala, K Snell - Humanities and Social Sciences Communications, 2022 - nature.com
Science and science policy are characterised by expectations. These expectations—as in
the field of biomedicine—may be related to describing novel findings, their use in curing …

Recoding the gift relationship: views on introducing genomic testing to blood donation

R Thorpe, V Raivola, B Masser - New Genetics and Society, 2024 - Taylor & Francis
This study examines how the institutional context informs the ways in which healthy
recipients relate to genomic information. Through focus group data, it considers the trend of …

Choreographing for public value in digital health?

N Gross, S Geiger - Big Data & Society, 2023 - journals.sagepub.com
Entanglements between public and private entities in digital health are not new, yet we do
not have full insight into how these public-private dances are choreographed or what …

Makna Welfare State Ditinjau dari Implementasi Pasal 34 Ayat (1) Undang-Undang Dasar 1945

AO Eriranda, E Kusdarini - Jurnal Hukum IUS QUIA IUSTUM, 2024 - journal.uii.ac.id
Kesejahteraan masyarakat adalah aspek penting dalam suatu negara, melibatkan berbagai
aspek kehidupan seperti kesehatan, pendidikan, ekonomi, lingkungan, sosial, dan politik …