Human genetics research has discovered thousands of proteins associated with complex
and rare diseases. Genome-wide association studies (GWAS) and studies of Mendelian …

To embrace the prospects of accurately diagnosing thousands of monogenic conditions,
predicting disease risks for complex traits or diseases, tailoring treatment to individuals' …

There is growing interest for a communitarian approach to the governance of genomics, and
for such governance to be grounded in principles of justice, equity and solidarity. However …

The ethical standards for the responsible conduct of human research have come a long way;
however, concerns surrounding equity remain in human genetics and genomics research …

Numerous ethical, legal, and social issues arise with biological sample sharing. The study
explored the perspectives of genetic and genomic researchers on the sharing of biological …

Biomedical research recruitment today focuses on including participants representative of
global genetic variation—rightfully so. But ethnographic attention to practices of inclusion …

This article draws on reflections about humanness, friendliness and partiality, in the writings
of Afro-communitarians to develop principles for thinking critically about why benefit sharing …

Introduction: Federal agencies have instituted guidelines to prioritize the enrollment and
retention of diverse participants in precision medicine research (PMR). Prior studies …

With the introduction of the European Health Data Space (EHDS), the secondary use of
health data for research purposes is attracting more attention. Secondary health data …

The post‐genomics era promises a revolution characterized by precision medicine and the
integration of genomics into almost every area of biomedical research. At the same time …