Disclosure of individual genetic data to research participants: the debate reconsidered

AL Bredenoord, HY Kroes, E Cuppen, M Parker… - Trends in Genetics, 2011 - cell.com
Despite extensive debate, there is no consensus on whether individual genetic data should
be disclosed to research participants. The emergence of whole-genome sequencing …

Citizen science in ecology: a place for humans in nature

FR Adler, AM Green… - Annals of the New York …, 2020 - Wiley Online Library
By involving the public, citizen science runs against the grain of an idealized science that
leaves out the human element, and thus provides new opportunities for ecological research …

Advanced qualitative research: A guide to using theory

M Oâ ²Reilly, N Kiyimba - 2015 - torrossa.com
In recent times there has been a growth in the popularity, use and acceptance of qualitative
methods in health, education, social sciences and other areas. This has been reflected in …

The art and science of knowledge synthesis

AC Tricco, J Tetzlaff, D Moher - Journal of clinical epidemiology, 2011 - Elsevier
OBJECTIVES: To review methods for completing knowledge synthesis. STUDY DESIGN
AND SETTING: We discuss how to complete a broad range of knowledge syntheses. Our …

Communicating the results of clinical research to participants: attitudes, practices, and future directions

DI Shalowitz, FG Miller - PLoS medicine, 2008 - journals.plos.org
Communicating the Results of Clinical Research to Participants: Attitudes, Practices, and Future
Directions | PLOS Medicine Skip to main content Advertisement PLOS Medicine Browse Current …

[图书][B] Using naturally occurring data in qualitative health research: A practical guide

N Kiyimba, JN Lester, M O'Reilly - 2018 - books.google.com
This highly practical resource brings new dimensions to the utility of qualitative data in
health research by focusing on naturally occurring data. It examines how naturally occurring …

Ethical, legal, and social implications of biobanks for genetics research

SB Haga, LM Beskow - Advances in genetics, 2008 - Elsevier
The elucidation of the causes of complex diseases pivots on understanding the interaction
between biological (genetic) and environmental factors that give rise to disease risk. The …

Duty to disclose what? Querying the putative obligation to return research results to participants

FA Miller, R Christensen, M Giacomini… - Journal of Medical …, 2008 - jme.bmj.com
Many research ethics guidelines now oblige researchers to offer research participants the
results of research in which they participated. This practice is intended to uphold respect for …

Qualitative study of participants' perceptions and preferences regarding research dissemination

RS Purvis, TH Abraham, CR Long… - AJOB Empirical …, 2017 - Taylor & Francis
Background: The study identifies the experiences, preferences, and perceptions of research
participants regarding dissemination of research findings at the participant level and …

Issues and challenges of involving users in medical device development

M Bridgelal Ram, PR Grocott, HCM Weir - Health Expectations, 2008 - Wiley Online Library
Background User engagement has become a central tenet of health‐care policy. This paper
reports on a case study in progress that highlights user engagement in the research process …