BackgroundCaring for a child with intellectual disabilities can be a very rewarding but
demanding experience. Research in this area has primarily focused on mothers, with …

Aims To assess the clinical utility of the Distress Thermometer (DT) in non‐cancer
populations. Methods The search was performed between the 6th and the 18th of April …

Objective To evaluate the efficacy of an online psychosocial group intervention for parents of
children with a chronic illness, in terms of anxiety and depression, and disease-related …

Background & aims Parents of children with intestinal failure, dependent on Home
Parenteral Nutrition (HPN), may experience psychosocial problems due to the illness and …

Abstract Background: Mucopolysaccharidosis type III (MPS III or Sanfilippo syndrome) is a
lysosomal storage disease resulting in progressive neurocognitive decline during childhood …

Background Congenital gastrointestinal malformation (CGIM) require neonatal surgical
treatment and may lead to disease-specific sequelae, which have a potential psychological …

Genetic counseling about Down syndrome is suggested to include information on a future
family life. However, there is an insufficient knowledge on the potential impact of parenting a …

Background Although facing a child's intellectual disability (ID) is considered to threaten
paternal psychosocial wellbeing, in recent years there has also been a burgeoning interest …

Background Steroid-sensitive nephrotic syndrome (SSNS) is associated with a relapsing–
remitting course that can be stressful for parents. As little is known of parental distress at the …

Este estudo objetiva descrever o funcionamento da família e identificar as redes sociais de
apoio percebidas pelos genitores de crianças com Síndrome de Down (SD). Foram …