Considering individuals with intellectual and developmental disabilities (IDD) are having
longer lives and outliving their parents, future planning has emerged as one of the most …

Background In keeping with worldwide demographic changes and an ageing population,
people with intellectual disabilities are living longer and all the evidence suggest that this …

Background: The prenatal care visit structure has changed little over the past century despite
the rapid evolution of technology including Internet and mobile phones. Little is known about …

(1) Background. This study assesses the quality of life in families with a member with an
intellectual disability using the Family Adjustment and Adaptation Response framework.(2) …

Abstract Objective Behavior problems in Dravet syndrome (DS) are common and can impact
the lives of patients tremendously. The current study aimed to give more insight into (1) the …

Background The life expectancy of people with profound intellectual and multiple disabilities
(PIMD) is increasing and parents express concerns about being possibly outlived by their …

Accessible Summary This paper attempts to find out why it is that many adults with a
learning disability and their older parents and carers do not make plans for their future. The …

Although the numbers of ageing adults with intellectual disabilities are increasing, current
systems are ill-prepared to meet the unique needs of this population and research is needed …

Abstract Purpose of the Study: To examine the dynamics of caring relations in older families
that include an adult with Intellectual Disabilities (ID). To date, there has been very little …

Family carers play an important role supporting individuals with intellectual and
developmental disabilities (I/DD) into adulthood. Funders of services often desire this …