Parental stress and family quality of life: Surveying family members of persons with intellectual disabilities

C Jenaro, N Flores, B Gutiérrez-Bermejo… - International journal of …, 2020 - mdpi.com
(1) Background. This study assesses the quality of life in families with a member with an
intellectual disability using the Family Adjustment and Adaptation Response framework.(2) …

The experiences of carers of adults with intellectual disabilities during the first COVID‐19 lockdown period

V Patel, G Perez‐Olivas, BS Kroese… - Journal of Policy and …, 2021 - Wiley Online Library
Background The recent COVID‐19 pandemic led to widespread international restrictions,
severely impacting on health and social care services. For many individuals with an …

The structure of informal social networks of persons with profound intellectual and multiple disabilities

A Kamstra, AAJ Van der Putten… - Journal of Applied …, 2015 - Wiley Online Library
Background Persons with less severe disabilities are able to express their needs and show
initiatives in social contacts, persons with profound intellectual and multiple disabilities …

A qualitative study about quality of life in Brazilian families with children who have severe or profound intellectual disability

SA Rodrigues, BJB Fontanella… - Journal of Applied …, 2019 - Wiley Online Library
Background This study investigated the psychocultural perspectives concerning family
quality of life among Brazilian families with children who have severe or profound …

The hidden (overlooked) impact of living through a pandemic: How parents of children with disabilities fared during COVID-19?

S Rakap, M Vural-Batik, S Kalkan, M Karnas… - Frontiers in …, 2022 - frontiersin.org
Objective The purpose of this study was to investigate the impact of the COVID-19 pandemic
on the quality of life of families of children with disabilities and the mediating roles of …

Physical and psychological health of family carers co‐residing with an adult relative with an intellectual disability

JM Grey, V Totsika, RP Hastings - Journal of Applied Research …, 2018 - Wiley Online Library
Background Providing long‐term care to an adult relative with intellectual disability can
impact negatively on caregivers' health and well‐being. Methods Data were collected via …

Family demands, social support and family functioning in Taiwanese families rearing children with D own syndrome

CY Hsiao - Journal of Intellectual Disability Research, 2014 - Wiley Online Library
Background D own syndrome (DS) affects not only children but also their families. Much
remains to be learned about factors that influence how families of children with DS function …

Understanding mental health outcomes related to compassion fatigue in parents of children diagnosed with intellectual disability

S Davenport, TR Zolnikov - Journal of Intellectual Disabilities, 2022 - journals.sagepub.com
Background: Parenting a child diagnosed with intellectual disability includes a variety of
stressors. The degree to which stress affects these parents has been given little emphasis …

Raising a child with disability and dealing with life events: A mother's journey

T O'Connell, M O'Halloran… - Journal of Intellectual …, 2013 - journals.sagepub.com
Intellectual disability services recognise people with intellectual disability as a family
member and aim to provide effective support that facilitates family cohesion. However, the …

Family quality of life in intellectual and developmental disabilities: A support-based framework to enhance quality of life in other families.

NI Zuna, I Brown, RI Brown - 2014 - psycnet.apa.org
Within the intellectual and developmental disability field, the study of family quality of life in
the past two decades has made strong and significant advances in understanding the …