Mapping and evaluating national data flows: transparency, privacy, and guiding infrastructural transformation

J Zhang, J Morley, J Gallifant, C Oddy, JT Teo… - The Lancet Digital …, 2023 - thelancet.com
The importance of big health data is recognised worldwide. Most UK National Health
Service (NHS) care interactions are recorded in electronic health records, resulting in an …

Developing robust benchmarks for driving forward AI innovation in healthcare

D Mincu, S Roy - Nature Machine Intelligence, 2022 - nature.com
Abstract Machine learning technologies have seen increased application to the healthcare
domain. The main drivers are openly available healthcare datasets, and a general interest …

Impact of primary to secondary care data sharing on care quality in NHS England hospitals

J Zhang, H Ashrafian, B Delaney, A Darzi - npj Digital Medicine, 2023 - nature.com
Health information exchange (HIE) is seen as a key component of effective care but remains
poorly evidenced at a health system level. In the UK National Health Service (NHS), the …

[HTML][HTML] One digital health intervention for monitoring human and animal welfare in smart cities: Viewpoint and use case

A Benis, M Haghi, TM Deserno… - JMIR medical …, 2023 - medinform.jmir.org
Smart cities and digital public health are closely related. Managing digital transformation in
urbanization and living spaces is challenging. It is critical to prioritize the emotional and …

[HTML][HTML] Secure collaborative platform for health care research in an open environment: perspective on accountability in access control

G Kang, YG Kim - Journal of Medical Internet Research, 2022 - jmir.org
Background With the recent use of IT in health care, a variety of eHealth data are
increasingly being collected and stored by national health agencies. As these eHealth data …

[HTML][HTML] Patients' and Members of the Public's Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

A Cumyn, JF Ménard, A Barton, R Dault… - Journal of Medical …, 2023 - jmir.org
Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK

LA Jones, JR Nelder, JM Fryer, PH Alsop, MR Geary… - Bmj Open, 2022 - bmjopen.bmj.com
Objectives UK National Health Service/Health and Social Care (NHS/HSC) data are variably
shared between healthcare organisations for direct care, and increasingly de-identified for …

Machine Learning Tools for Acute Respiratory Distress Syndrome Detection and Prediction

F Rubulotta, S Bahrami, DC Marshall… - Critical Care …, 2024 - journals.lww.com
Abstract Machine learning (ML) tools for acute respiratory distress syndrome (ARDS)
detection and prediction are increasingly used. Therefore, understanding risks and benefits …

[HTML][HTML] Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

R Baines, S Stevens, D Austin, K Anil… - Journal of Medical …, 2024 - jmir.org
Background International advances in information communication, eHealth, and other digital
health technologies have led to significant expansions in the collection and analysis of …

[HTML][HTML] Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study

ZK Yusuf, WG Dixon, C Sharp, L Cook, S Holm… - Journal of Medical …, 2024 - jmir.org
Background Although many people are supportive of their deidentified health care data
being used for research, concerns about privacy, safety, and security of health care data …