Judging the quality of care at the end of life: can proxies provide reliable information?

CJ McPherson, JM Addington-Hall - Social science & medicine, 2003 - Elsevier
A major challenge in research into care at the end of life is the difficulty of obtaining the
views and experiences of representative samples of patients. Studies relying on patients' …

Palliative care for families: remembering the hidden patients

LJ Kristjanson, S Aoun - The Canadian Journal of Psychiatry, 2004 - journals.sagepub.com
Families of patients receiving palliative care are profoundly affected by the challenges of the
illness. They observe care that the patient receives, provide care for the patient, and receive …

Caregiving as a dyadic process: Perspectives from caregiver and receiver

KS Lyons, SH Zarit, AG Sayer… - The Journals of …, 2002 - academic.oup.com
Most family caregiving research has relied on the perspective of the caregiver but has not
systematically examined the views and opinions of the elder who is receiving care. The …

Effects of the home environmental skill-building program on the caregiver–care recipient dyad: 6-month outcomes from the Philadelphia REACH initiative

LN Gitlin, L Winter, M Corcoran, MP Dennis… - The …, 2003 - academic.oup.com
Purpose: We examine 6-month effects of the Environmental Skill-Building Program on
caregiver well-being and care recipient functioning and whether effects vary by caregiver …

[HTML][HTML] Use of strong opioids in advanced cancer pain: a randomized trial

F Marinangeli, A Ciccozzi, M Leonardis… - Journal of pain and …, 2004 - Elsevier
The World Health Organization (WHO) guidelines for the treatment of cancer pain
recommend nonopioid analgesics as first-line therapy, so-called “weak” analgesics …

An exercise intervention for advanced cancer patients experiencing fatigue: a pilot study

D Porock, LJ Kristjanson, K Tinnelly… - … of palliative care, 2000 - journals.sagepub.com
Fatigue is reported by advanced cancer patients to be their most prevalent and distressing
symptom. Despite this, few interventions have been developed and tested to manage this …

Use of family proxies in quality of life research for cancer patients at the end of life: a literature review

ST Tang, R McCorkle - Cancer investigation, 2002 - Taylor & Francis
One of the main goals of end-of-life care is to achieve the best quality of life (QOL) for
patients and their families. Quality of life, therefore, represents a significant outcome …

Good deaths, bad deaths, and preferences for the end of life: a qualitative study of geriatric outpatients

EK Vig, NA Davenport… - Journal of the American …, 2002 - Wiley Online Library
OBJECTIVES: Patient involvement in decision‐making has been advocated to improve the
quality of life at the end of life. Although the size of the oldest segment of the population is …

[HTML][HTML] Family members' perceived needs for bereavement follow-up

A Milberg, EC Olsson, M Jakobsson, M Olsson… - Journal of pain and …, 2008 - Elsevier
Palliative care does not end with the death of the patient, and many palliative care services
offer specific follow-up services for the bereaved. The aims of this study were to quantitate …

Next of kin's experience of powerlessness and helplessness in palliative home care

A Milberg, P Strang, M Jakobsson - Supportive Care in Cancer, 2004 - Springer
Goals of work Powerlessness and helplessness have been very little studied. The aims of
this study were (1) to describe what characterise such experiences and the meaning of them …