Children's complex care needs: a systematic concept analysis of multidisciplinary language

M Brenner, C Kidston, C Hilliard, I Coyne… - European Journal of …, 2018 - Springer
Complex care in the arena of child health is a growing phenomenon. Although considerable
research is taking place, there remains limited understanding and agreement on the concept …

Parent empowerment in pediatric healthcare settings: a systematic review of observational studies

LE Ashcraft, M Asato, AJ Houtrow… - The Patient-Patient …, 2019 - Springer
Background Parent empowerment is often an expressed goal in clinical pediatrics and in
pediatric research, but the antecedents and consequences of parent empowerment are not …

“I know how to advocate”: Parents' experiences in advocating for children and youth diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas… - Health services …, 2022 - journals.sagepub.com
Background: Parental advocacy is a dynamic process that changes depending on the
circumstances and needs of the child and parent. Communication deficits related to an …

“I have a Ph. D. in my daughter”: Mother and Child Experiences of Living with Childhood Chronic Illness

K Baker, AM Claridge - Journal of Child and Family Studies, 2023 - Springer
Abstract Children in the United States are increasingly living with chronic illnesses. Existing
literature has focused on adolescent children's experiences. The current study involved …

“I will communicate with you, but let me be in control”: Understanding how parents manage private information about their chronically ill children

KA Rafferty, K Hutton, S Heller - Health Communication, 2019 - Taylor & Francis
Parents have a significant role in the management of a child's chronic condition. Parents are
often the only consistent individuals managing a child's health across his or her childhood …

Exploring parental decision making for a child with a life-limiting condition: An interpretive description study

N Yazdani, J Chartrand, D Stacey - Journal of Hospice & …, 2022 - journals.lww.com
The purpose of this study was to explore parents' and health care professionals' perception
of parents' experiences in making decisions between acute and palliative therapies along …

Power is knowledge: empowering parents of children with cerebral visual impairment

N McDowell - Disability & Society, 2021 - Taylor & Francis
For parents of children with cerebral visual impairment, the greatest need during the
diagnostic period is to gain knowledge about their child's visual difficulties. Unfortunately …

“You are not alone”: Advice giving for parents of children living with complex chronic conditions

KA Rafferty, GA Beck - Health Communication, 2020 - Taylor & Francis
Parental advice giving serves as an important form of informational support for parents of
children living with complex chronic conditions (CCCs). These messages can provide …

Supporting in solidarity: An examination of social support, advocacy, and barriers among birthing doulas

G Bihn-Coss, N Egbert - Communication Quarterly, 2023 - Taylor & Francis
Doula assistance before, during, and after childbirth can reduce infant mortality, improve
birth outcomes, and ensure a birthing person's physical and emotional needs are met …

'Managing an unexpected life-a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition

J Price, F Hurley, G Kiernan - Journal of Child Health Care, 2024 - journals.sagepub.com
Parents of children with non-malignant life-limiting conditions frequently accept roles that
exceed the conventional activities of parenting in relation to the intensity, complexity and …