Effects of race and ethnicity on diagnosis and management of inflammatory bowel diseases

EL Barnes, EV Loftus Jr, MD Kappelman - Gastroenterology, 2021 - Elsevier
Although Crohn's disease (CD) and ulcerative colitis (UC) have been considered as
disorders that affect individuals of European ancestry, the epidemiology of the inflammatory …

PCORnet® 2020: current state, accomplishments, and future directions

CB Forrest, KM McTigue, AF Hernandez… - Journal of Clinical …, 2021 - Elsevier
Abstract Objective To describe PCORnet, a clinical research network developed for patient-
centered outcomes research on a national scale. Study Design and Setting Descriptive …

A multicenter program for electronic health record screening for patients with heart failure with preserved ejection fraction: Lessons from the DELIVER-EHR initiative

AE Peters, MO Ogunniyi, SM Hegde, C Bianco… - Contemporary Clinical …, 2022 - Elsevier
Efficiency in clinical trial recruitment and enrollment remains a major challenge in many
areas of clinical medicine. In particular, despite the prevalence of heart failure with …

Pragmatic guidance for embedding pragmatic clinical trials in health plans: Large simple trials aren't so simple

NM Cocoros, JH Gurwitz, MJ Cziraky… - Clinical …, 2023 - journals.sagepub.com
Background: There are unique opportunities related to the design and conduct of pragmatic
trials embedded in health insurance plans, which have longitudinal data on member/patient …

[HTML][HTML] Developing Methods to Link Patient Records across Data Sets That Preserve Patient Privacy

K Haynes, A Agiro, X Chen, JJ Stephenson, B Eshete… - 2023 - europepmc.org
Background Patient-centered outcomes research (PCOR) relies on access to researchable
health care data for a broad spectrum of patients. Payer-stakeholders, such as Anthem, can …

Examples from administrative claims data and electronic health records

E Hasan - Pragmatic Randomized Clinical Trials, 2021 - Elsevier
The use of claims data in clinical research is gaining widespread acceptance by
stakeholders, resulting in increased utilization by researchers in the real-world, late phase …