Communication between persons with multiple sclerosis and their health care providers: A scoping review

CM Thompson, MD Pulido, S Babu, N Zenzola… - Patient Education and …, 2022 - Elsevier
Objectives This study undertakes a scoping review of research about communication
between persons with MS and their health care providers. Design PubMed, PsycInfo …

Promoting participatory research in chronicity: the ESPRIMO biopsychosocial intervention for young adults with multiple sclerosis

V Donisi, S Poli, MA Mazzi, F Gobbin, F Schena… - Frontiers in …, 2022 - frontiersin.org
Background Co-creation allows to develop tailored interventions in chronicity and to
increase patients' engagement. Considering the interacting nature of physical …

Preferences toward attributes of disease-modifying therapies: the role of nurses in multiple sclerosis care

B del Río-Muñoz, C Azanza-Munarriz… - Journal of …, 2022 - journals.lww.com
BACKGROUND: Nurses play an essential role in coordinating the care of patients with
multiple sclerosis (MS) throughout their disease trajectory in a complex treatment landscape …

Consensus‐Based Guidelines for Communicating a Misdiagnosis of Multiple Sclerosis to Reduce Psychological Distress

AL Baufeldt, N Evangelou, N Moghaddam… - Brain and …, 2024 - Wiley Online Library
Background Multiple sclerosis (MS) misdiagnosis is common, and when discovered,
frequently leads to substantial disruption to patients' lives and anxiety for clinicians. Our …

[HTML][HTML] Unveiling the Core Competencies in Neuroscience Nursing Within the Context of Italy: A Qualitative Phenomenological Analysis

A Bonacaro, E La Malfa, M Minari, R La Sala, G Artioli… - Healthcare, 2024 - mdpi.com
Background: In 2008, the European Association of Neuroscience Nursing (EANN) initiated
the NeuroBlend™ project, which aimed to delineate the roles and competencies of …

Adherence and persistence to self-administered disease-modifying therapies in patients with multiple sclerosis: A multisite analysis

AD Zuckerman, J DeClercq, D Simonson… - Multiple Sclerosis and …, 2023 - Elsevier
Background Though there are several disease-modifying therapy (DMT) options for patients
with multiple sclerosis (MS), treatment outcomes rely on patient adherence and persistence …

Vuxna personers upplevelse av att leva med Multipel Skleros

I Brunnberg, C Östman - 2024 - diva-portal.org
Bakgrund: Multipel Skleros (MS) är en av de vanligaste neurologiska sjukdomarna och
drabbar över 2, 8 miljoner människor världen över. Några symtom på MS är fatigue …

The Use of SymptoMScreen for Quality Improvement in Interdisciplinary Multiple Sclerosis Care

LL Lakin - 2024 - search.proquest.com
Background/Significance: Comprehensive and quality multiple sclerosis (MS) care requires
an adequate understanding of the functional impairments experienced by people living with …

[HTML][HTML] Neurodegenerative disorders: a multidisciplinary approach to care

Y Lie - Medicine Today, 2023 - medicinetoday.com.au
People living with neurodegenerative disorders have diverse and complex needs that
demand a multidisciplinary approach to care, with GPs being key members of the team …

Att leva med Multipel skleros: En litteraturöversikt om patientens upplevelseav sjukdomens påverkan i det dagliga livet

H Al Sharifi, N Mustafai - 2023 - diva-portal.org
Multipel skleros (MS) är en kronisk autoimmun sjukdom. Personer med en MS sjukdom
upplever många utmaningar och svårigheter till följd av sina symtom. Tidigare forskning …