The loss of vision after damage to the retina, optic nerve, or brain has often grave
consequences in everyday life such as problems with recognizing faces, reading, or …

Purpose To summarize relevant evidence investigating the psychologic adjustment to
irreversible vision loss (IVL) in adults. Design Irreversible vision loss entails a challenging …

Abstract Patients diagnosed with Retinitis Pigmentosa (RP) show, in the advanced stage of
the disease, severely restricted peripheral vision causing poor mobility and decline in quality …

Purpose Retinitis pigmentosa (RP) is the most common retinal degeneration causing
blindness. Although their clinical problems are amenable for the clinical diagnosis, their day …

X-linked retinitis pigmentosa (XLRP) is a severe form of retinitis pigmentosa (RP), a rare,
inherited retinal degenerative disorder, that causes blindness. The aim of this literature …

Background Retinitis pigmentosa (RP) are a group of incurable and inherited eye
conditions, and the leading cause of inherited blindness in people under the age of 60. The …

Patient-reported outcome measures (PROMs) are tools designed to capture how a patient
feels or functions, without the input or interpretation of anyone else. The earliest PROMs …

Advances in the understanding of the genetic, molecular, and cellular biology of retinal
diseases have led to the development of new treatments. These expanding treatment …

Background The lack of an appropriate retina-specific patient-reported outcome instrument
restricts the understanding of the full impact of hereditary retinal diseases and other less …

Background Retinitis pigmentosa is a group of genetic progressive retinal dystrophies that
may adversely affect daily life. Those with RP should develop adaptive coping strategies to …