The experience of Parkinson's disease: a systematic review and meta‐ethnography

A Soundy, B Stubbs, C Roskell - The Scientific World Journal, 2014 - Wiley Online Library
There has been little attempt to summarise and synthesise qualitative studies concerning the
experience and perception of living with Parkinson's disease. Bringing this information …

Disability and recovery in schizophrenia: a systematic review of cognitive behavioral therapy interventions

I Nowak, C Sabariego, P Świtaj, M Anczewska - BMC psychiatry, 2016 - Springer
Background Schizophrenia is a disabling disease that impacts all major life areas. There is a
growing need for meeting the challenge of disability from a perspective that extends …

[HTML][HTML] The human functioning revolution: implications for health systems and sciences

J Bickenbach, S Rubinelli, C Baffone, G Stucki - Frontiers in Science, 2023 - frontiersin.org
The World Health Organization (WHO) concept of human functioning represents a new way
of thinking about health that has wide-ranging consequences. This article explicates this …

Enhancing the collective, protecting the personal: the valuable role of composite narratives in medical education research

Z McElhinney, C Kennedy - Perspectives on Medical Education, 2022 - Springer
Narrative research approaches provide the opportunity for constructing a detailed
understanding of lived experiences relevant to medical education, in areas such as illness …

[HTML][HTML] The psychological processes of adaptation and hope in patients with multiple sclerosis: a thematic synthesis

A Soundy, C Roskell, T Elder, J Collett… - Open Journal of Therapy …, 2016 - scirp.org
Purpose: The purpose of the current research was to review the lived experiences of
patients with multiple sclerosis (MS) in order to extrapolate the psychological process of …

Social capital components and social support of persons with multiple sclerosis: a systematic review of the literature from 2000 to 2018

E Koutsogeorgou, AM Chiesi… - Disability and …, 2020 - Taylor & Francis
Purpose: To identify experiences of persons with multiple sclerosis (MS) in terms of social
capital and its components (ie, social networks, trust, and interpersonal relationships) and …

Understanding the impact of brain disorders: towards a 'horizontal epidemiology'of psychosocial difficulties and their determinants

A Cieza, M Anczewska, JL Ayuso-Mateos, M Baker… - PLoS …, 2015 - journals.plos.org
Objective To test the hypothesis of 'horizontal epidemiology', ie that psychosocial difficulties
(PSDs), such as sleep disturbances, emotional instability and difficulties in personal …

Burden of multiple sclerosis: impact on the patient, family and society

AA Sarhan, KA El-Sharkawy, AM Mahmoudy… - Multiple Sclerosis and …, 2022 - Elsevier
Background Multiple sclerosis (MS) is a chronic autoimmune neurological disease that
significantly influences the health-related quality of life of individuals, their families, and …

Factors related to social support in neurological and mental disorders

K Kamenov, M Cabello, FF Caballero, A Cieza… - PloS one, 2016 - journals.plos.org
Despite the huge body of research on social support, literature has been primarily focused
on its beneficial role for both physical and mental health. It is still unclear why people with …

Barriers and facilitators to epilepsy self-management for patients with physical and psychological co-morbidity

AT Perzynski, RK Ramsey… - Chronic …, 2017 - journals.sagepub.com
Objectives This exploratory study identifies barriers and facilitators to self-management to
inform future epilepsy self-management interventions for persons who have epilepsy …