A scoping review documenting cancer outcomes and inequities for adults living with intellectual and/or developmental disabilities

M Stirling, A Anderson, H Ouellette-Kuntz… - European Journal of …, 2021 - Elsevier
Introduction Emerging evidence suggests adults with intellectual and/or developmental
disabilities (IDD) may be at risk of inequities in cancer experiences and outcomes …

Are researchers addressing cancer treatment and survivorship among people with intellectual and developmental disabilities in the US? A scoping review

G Samtani, TL Bassford… - Intellectual and …, 2021 - meridian.allenpress.com
People with intellectual and developmental disabilities (PWIDD) often encounter barriers in
the health care system when seeking general and specialized medical care. Literature has …

Stage IV breast, colorectal, and lung cancer at diagnosis in adults living with intellectual or developmental disabilities: A population‐based cross‐sectional study

AL Mahar, K Biggs, RL Hansford, S Derksen… - Cancer, 2024 - Wiley Online Library
Background Cancer is a leading cause of death among people living with intellectual or
developmental disabilities (IDD). Although studies have documented lower cancer …

Cancer in deceased adults with intellectual disabilities: English population-based study using linked data from three sources

P Heslop, A Cook, B Sullivan, R Calkin, J Pollard… - BMJ open, 2022 - bmjopen.bmj.com
Objective To improve our understanding of cancer in adults with intellectual disabilities.
Design Population-based study using linked data about deceased adults from the Learning …

Use of health services in the last year of life and cause of death in people with intellectual disability: a retrospective matched cohort study

K Brameld, K Spilsbury, L Rosenwax, H Leonard… - BMJ open, 2018 - bmjopen.bmj.com
Objective To describe the cause of death together with emergency department presentations
and hospital admissions in the last year of life of people with intellectual disability. Method A …

Cancer diagnoses among older people with intellectual disability compared with the general population: a national register study

D Satgé, A Axmon, B Trétarre… - Journal of …, 2020 - Wiley Online Library
Background Cancer occurrence among older people with intellectual disability (ID) is poorly
documented, so we investigated the frequency and distribution of cancer in older people …

[HTML][HTML] Selecting variants of unknown significance through network-based gene-association significantly improves risk prediction for disease-control cohorts

A Oulas, G Minadakis, M Zachariou, GM Spyrou - Scientific Reports, 2019 - nature.com
Variants of unknown/uncertain significance (VUS) pose a huge dilemma in current genetic
variation screening methods and genetic counselling. Driven by methods of next generation …

[HTML][HTML] Benefits and harms of mammography screening for women with Down syndrome: a collaborative modeling study

O Alagoz, A Hajjar, S Chootipongchaivat… - Journal of general …, 2019 - Springer
ABSTRACT Background Women with Down syndrome have a lower breast cancer risk and
significantly lower life expectancies than women without Down syndrome. Therefore, it is not …

Cancer risk‐factor and symptom awareness among adults with intellectual disabilities, paid and unpaid carers, and healthcare practitioners: a scoping review

N Gil, A Cox, KL Whitaker… - Journal of Intellectual …, 2024 - Wiley Online Library
Background The physical health of people with intellectual disabilities (ID) has been
identified as an area of ongoing concern and priority. Research has increasingly focused on …

[HTML][HTML] Cancer pain in people with intellectual disabilities: systematic review and survey of health care professionals

SK Millard, NC de Knegt - Journal of pain and symptom management, 2019 - Elsevier
Context Owing to life expectancy improvements for people with intellectual disabilities, their
risk of developing cancer is increasing. Pain is an inevitable aspect of cancerous diseases …