The loss of a child, bereavement and the search for meaning: A systematic review of the most recent parental interventions

L Pelacho-Rios, G Bernabe-Valero - Current Psychology, 2023 - Springer
The loss of a child is considered one of the most tragic experiences that parents can go
through. The present systematic review aims to compile the most recently published …

[HTML][HTML] Challenges and priorities for pediatric palliative care research in the US and similar practice settings: report from a pediatric palliative care research network …

C Feudtner, AR Rosenberg, RD Boss, L Wiener… - Journal of Pain and …, 2019 - Elsevier
Context To dramatically advance the evidence base for pediatric palliative care (PPC)
interventions, practices, and programs in the US and similar practice settings, the field needs …

[HTML][HTML] Engaging parents of children who died from cancer in research on the early grief experience

JM Snaman, G Helton, JN Baker, SE Morris… - Journal of Pain and …, 2021 - Elsevier
Context Bereaved parents provide an important perspective for improving care for patients
and families throughout the illness and after a child's death. However, involvement of …

Consulting parents bereaved by childhood cancer: A qualitative study to improve bereavement services

I Loxton, M Oxlad, A Perry - Death Studies, 2023 - Taylor & Francis
Twelve Australian parents bereaved by childhood cancer were interviewed about their
experiences of, and preferences for, bereavement support, to inform recommendations to …

End of life communication among caregivers of children with cancer: A qualitative approach to understanding support desired by families

AE Kenney, SZ Bedoya, CA Gerhardt… - … & supportive care, 2021 - cambridge.org
ObjectivesClinicians and parents are encouraged to have open and honest communication
about end of life with children with cancer, yet there remains limited research in this area …

The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer

EG Robertson, K Hetherington, R Daly… - Cancer …, 2024 - Wiley Online Library
Background Patient‐reported outcomes measures (PROMs) are increasingly being
collected within cancer clinical trials, yet limited literature on the feasibility and acceptability …

Balancing protection and progress in pediatric palliative care research: Stakeholder perspectives

K Mooney-Doyle, KA Pyke-Grimm, AF Lanzel… - …, 2022 - publications.aap.org
Pediatric palliative care, including end-of-life care, remains a relatively new area of
interdisciplinary clinical practice and research. Improving the multifaceted and complex care …

Perceptions of participating in family‐centered fertility research among adolescent and young adult males newly diagnosed with cancer: A qualitative study

L Nahata, TL Morgan, KG Lipak, OE Clark… - Pediatric blood & …, 2019 - Wiley Online Library
Background Over half of male childhood cancer survivors experience infertility after
treatment, which is known to cause distress and impact future quality of life. Sperm banking …

[HTML][HTML] The end-of-life trajectory in childhood cancer: Bereaved parents' perceptions of the availability, use, and helpfulness of support services

SZ Bedoya, H Battles, CA Gerhardt… - Journal of Psychosocial …, 2021 - journals.lww.com
Background: The provision of bereavement support for parents is a recognized tenet of end
of life (EoL) care, yet there is a knowledge gap concerning how and when health care …

“It Can Be Hard But It's Not Bad”: Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research

C Reggio, C Mowbray, MK Waldron… - Journal of Palliative …, 2021 - liebertpub.com
Background: To allay uneasiness among clinicians and institutional review board members
about pediatric palliative care research and to yield new knowledge relevant to study …