[HTML][HTML] Children and young people's contributions to public involvement and engagement activities in health-related research: A scoping review

A Rouncefield-Swales, J Harris, B Carter, L Bray… - PloS one, 2021 - journals.plos.org
Background There has been an increasing interest in how children and young people can
be involved in patient and public involvement and engagement (PPIE) in health research …

Evaluating the “return on patient engagement initiatives” in medicines research and development: a literature review

LE Vat, T Finlay… - Health …, 2020 - Wiley Online Library
Background Showing how engagement adds value for all stakeholders can be an effective
motivator for broader implementation of patient engagement. However, it is unclear what …

'I'm not just a guinea pig': Academic and community perceptions of participatory autism research

J Den Houting, J Higgins, K Isaacs, J Mahony… - …, 2021 - journals.sagepub.com
Despite calls for increased community engagement in autism research, the published
evidence base suggests that participatory autism research remains rare. This study …

[HTML][HTML] Adverse events after first COVID-19 vaccination in patients with autoimmune diseases

L Boekel, LY Kummer, KPJ van Dam… - The Lancet …, 2021 - thelancet.com
June 18, 2021 https://doi. org/10.1016/S2665-9913 (21) 00181-8 digital platforms has had
an adverse impact on diversity and participation from under-represented groups due to …

[HTML][HTML] The impact of patient involvement in research: a case study of the planning, conduct and dissemination of a clinical, controlled trial

PC Skovlund, BK Nielsen, HV Thaysen… - Research involvement …, 2020 - Springer
Background The interest in patient and public involvement (PPI) in health research is
increasing. However, the experience and knowledge of PPI throughout the entire research …

“About sixty per cent I want to do it”: Health researchers' attitudes to, and experiences of, patient and public involvement (PPI)—A qualitative interview study

AM Boylan, L Locock, R Thomson… - Health …, 2019 - Wiley Online Library
Background Funders, policy‐makers and research organizations increasingly expect health
researchers in the UK to involve patients and members of the public in research. It has been …

The impact of patient and public involvement in health research versus healthcare: a scoping review of reviews

A Modigh, F Sampaio, L Moberg, M Fredriksson - Health Policy, 2021 - Elsevier
Many policies promote patient and public involvement (PPI) in health research and
healthcare provision. However, research points to uncertainties about its impact. The aim of …

Series: public engagement with research. Part 1: the fundamentals of public engagement with research

S Blackburn, M Clinch, M De Wit, A Moser… - European Journal of …, 2023 - Taylor & Francis
Background In the first of a four-part series, we describe the fundamentals of public
engagement in primary care research. Objectives The article's purpose is to encourage …

[HTML][HTML] Exploring community engaged research experiences and preferences: a multi-level qualitative investigation

HR Han, A Xu, KJW Mendez, S Okoye, J Cudjoe… - Research involvement …, 2021 - Springer
Background Community engagement may make research more relevant, translatable, and
sustainable, hence improving the possibility of reducing health disparities. The purpose of …

Participatory research in health promotion: a critical review and illustration of rationales

J Harting, K Kruithof, L Ruijter… - Health Promotion …, 2022 - academic.oup.com
In health promotion research, enthusiasm for patient and public involvement (PPI) is
growing. However, a lack of conceptual clarity leads to ambiguities in participatory …