[HTML][HTML] Adolescents and young adults (AYA) with cancer: a position paper from the AYA Working Group of the European Society for Medical Oncology (ESMO) and …

A Ferrari, D Stark, FA Peccatori, L Fern, V Laurence… - ESMO open, 2021 - Elsevier
Highlights•Reflects the ESMO/SIOPE AYA Working Group position regarding current AYA
cancer care, challenges and possible solutions.•Key challenges are lack of understanding of …

Understanding care and outcomes in adolescents and young adults with cancer: A review of the AYA HOPE study

AW Smith, T Keegan, A Hamilton, C Lynch… - Pediatric blood & …, 2019 - Wiley Online Library
Historically, adolescents and young adults (AYA) diagnosed with cancer have been an
understudied population, and their unique care experiences, needs, and outcomes were not …

Adolescent and young adult (AYA) oncology, version 2.2024, NCCN clinical practice guidelines in oncology

S Bhatia, AS Pappo, M Acquazzino… - Journal of the National …, 2023 - jnccn.org
This selection from the NCCN Guidelines for Adolescent and Young Adult (AYA) Oncology
focuses on considerations for the comprehensive care of AYA patients with cancer …

[HTML][HTML] Current state of quality of life and patient-reported outcomes research

A Bottomley, JC Reijneveld, M Koller… - European Journal of …, 2019 - Elsevier
The 5th EORTC Quality of Life in Cancer Clinical Trials Conference presented the current
state of quality of life and other patient-reported outcomes (PROs) research from the …

The role of digital health in supporting cancer patients' mental health and psychological well-being for a better quality of life: A systematic literature review

S Elkefi, D Trapani, S Ryan - International Journal of Medical Informatics, 2023 - Elsevier
Background This work aims to evaluate the role of digital health in supporting the mental
and psychological well-being of patients with cancer and identify the associated challenges …

Patient reported outcomes in oncology: changing perspectives—a systematic review

A Silveira, T Sequeira, J Goncalves… - Health and quality of life …, 2022 - Springer
In public health context, oncology is associated with severe negative impact on patients and
on their relatives' quality of life. Over the last decades, survival has remained at 50 …

Post-traumatic growth and resilience in adolescent and young adult cancer patients: An overview

SR Greup, SEJ Kaal, R Jansen… - Journal of adolescent …, 2018 - liebertpub.com
The aim of this study was to provide an overview of the literature on post-traumatic growth
(PTG) and resilience among adolescent and young adult (AYA) cancer patients. A literature …

Social consequences of advanced cancer in patients and their informal caregivers: a qualitative study

J van Roij, L Brom, M Youssef-El Soud… - Supportive Care in …, 2019 - Springer
Purpose Cancer threatens the social well-being of patients and their informal caregivers.
Social life is even more profoundly affected in advanced diseases, but research on social …

Inclusion of a core patient-reported outcomes battery in adolescent and young adult cancer clinical trials

ME Roth, SK Parsons, PA Ganz… - JNCI: Journal of the …, 2023 - academic.oup.com
Disparities in care, treatment-related toxicity and health-related quality of life (HRQoL) for
adolescents and young adults (AYAs, aged 15-39 years) with cancer are under-addressed …

Quality of life among survivors of adolescent and young adult cancer in Canada: A Young Adults With Cancer in Their Prime (YACPRIME) study

FSM Schulte, K Chalifour, G Eaton, SN Garland - Cancer, 2021 - Wiley Online Library
Background The quality of life (QoL) among survivors of adolescent and young adult (AYA)
cancer may be compromised compared with that in the general population. In this study, the …