Background and purpose The European Association of Palliative Care Taskforce, in
collaboration with the Scientific Panel on Palliative Care in Neurology of the European …

Most health-care professionals are trained to promote and maintain life and often have
difficulty when faced with the often rapid decline and death of people with terminal illnesses …

The care and management of patients with ALS should always be patient focused, with
attention to holistic and emotional aspects of well-being. It is the patient who ultimately …

Background: More than a dozen countries have now legalized some form of assisted dying,
and additional jurisdictions are considering similar legislations or expanding eligibility …

Research aims The motivations that lead to wishes to die (WTD) in palliative care patients
with cancer are relatively well studied. But little is known about WTD in other pathologies …

Our objective was to determine prevalence of depressive disorders and wish to die at the
baseline visit of a longitudinal multisite study of patients with ALS. Structured telephone …

The objective of this study is to determine if quality of care, symptoms of depression, disease
characteristics and quality of life of patients with amyotrophic lateral sclerosis (ALS) are …

Abstract Context Meaning in life (MiL) is a key factor for ensuring spiritual well-being and
quality of life among patients with life-threatening illnesses. However, the role of MiL in …

How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and
engage in end-of-life decision-making? What informational or supportive needs do they …

Background: An important concern of healthcare professionals when exploring the wish to
hasten death with patients is the risk of causing them some type of distress. Aim: To assess …