Informal caregivers of patients with COPD: Home Sweet Home?

N Nakken, DJA Janssen… - European …, 2015 - Eur Respiratory Soc
The burden of chronic obstructive pulmonary disease (COPD) on society is increasing.
Healthcare systems should support patients with COPD in achieving an optimal quality of …

Inadequate palliative care in chronic lung disease. An issue of health care inequality

CE Brown, NS Jecker, JR Curtis - Annals of the American Thoracic …, 2016 - atsjournals.org
Patients with chronic lung diseases suffer higher symptom burden, lower quality of life, and
greater social isolation compared with patients with other diagnoses, such as cancer. These …

Palliative care early in the care continuum among patients with serious respiratory illness: an official ATS/AAHPM/HPNA/SWHPN policy statement

DR Sullivan, AS Iyer, S Enguidanos… - American Journal of …, 2022 - atsjournals.org
Background: Patients with serious respiratory illness and their caregivers suffer
considerable burdens, and palliative care is a fundamental right for anyone who needs it …

Development of a new multidimensional individual and interpersonal resilience measure for older adults

AS Martin, B Distelberg, BW Palmer… - Aging & mental …, 2015 - Taylor & Francis
Objectives: Develop an empirically grounded measure that can be used to assess family
and individual resilience in a population of older adults (aged 50–99). Methods: Cross …

Caregivers' burden in patients with COPD

M Miravitlles, LM Peña-Longobardo… - … journal of chronic …, 2015 - Taylor & Francis
Objective Chronic obstructive pulmonary disease (COPD) is a very prevalent and
invalidating disease. The aim of this study was to analyze the burden borne by informal …

Methods to assess adults' learning styles and factors affecting learning in health education: A scoping review

AJL Muijsenberg, S Houben-Wilke, Y Zeng… - Patient Education and …, 2023 - Elsevier
Objectives To develop learner-centered education, knowledge about learning styles and
factors that affect the ability to learn in patients and their significant others are essential. The …

'Who cares?'The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods …

MC Noonan, J Wingham, RS Taylor - BMJ open, 2018 - bmjopen.bmj.com
Objective To assess the experiences of unpaid caregivers providing care to people with
heart failure (HF) or chronic obstructive pulmonary disease (COPD) or coronary artery …

Symptom burden of chronic lung disease compared with lung cancer at time of referral for palliative care consultation

NG Wysham, CE Cox, SP Wolf… - Annals of the American …, 2015 - atsjournals.org
Rationale: A growing evidence base supports provision of palliative care services alongside
life-prolonging care. Whereas palliative care processes have been implemented widely in …

Impacts of COPD on family carers and supportive interventions: a narrative review

J Cruz, A Marques, D Figueiredo - Health & social care in the …, 2017 - Wiley Online Library
Caring for a relative with chronic disease influences multiple dimensions of family carers'
lives. This study aimed to provide an overview of the impacts of chronic obstructive …

The experience of caregiver burden when being next of kin to a person with severe chronic obstructive pulmonary disease: A qualitative study

H Johansson, C Berterö… - Chronic Respiratory …, 2023 - journals.sagepub.com
Background Chronic obstructive pulmonary disease (COPD) is an inflammatory and
irreversible lung disease. For next of kin caregiver burden can be a consequence of the …