Therapeutic misconception has been extensively studied and addressed within clinical
trials. An equivalent in the genetic research context has been identified as diagnostic …

With the domestic and international proliferation of biobanks and their associated
connections to health information databases, scholarly attention has been turning from the …

Preparing healthy community members with timely communications prior to engaging them
in a request to donate biospecimens promises to improve the experience of biobanking …

Racial/ethnic minorities are underrepresented in current biobanking programs. The current
study utilized community-based participatory research to identify motivating factors and …

To characterize patients' willingness to donate a biospecimen for future research as part of a
breast cancer-related biobank involving a general screening population. We performed a …

With the completed sequence of the human genome has come the prospect of substantially
improving the quality of life for millions through personalized medicine approaches. Still, any …

Background The tissue biobanking of specific biological residual materials, which
constitutes a useful resource for medical/scientific research, has raised some ethical issues …

Since the US National Institutes of Health (NIH) Revitalization Act of 1993, researchers with
federal funding have been required to include “minorities and women” in their clinical trials …

Cancer patients were questioned about the consent process in a context in which they were
routinely requested to donate tumor samples to research. After in-depth interviews of 19 …

Background: The aims of this study were to determine which consent procedure patients
prefer for use of stored tissue for research purposes and what the effects of consent …