Most research regarding youth with autism spectrum disorder has not focused on their first-
person perspectives providing limited insight into methodologies best suited to eliciting their …

Turner syndrome (TS), although considered a rare disease, is the most common sex
chromosome abnormality in women, with an incident of 1 in 2500 female births. TS is …

Background Most evidence about what works in transitional care comes from small studies
in single clinical specialties. We tested the hypothesis that exposures to nine recommended …

Problem Improvements in chronic disease management has led to increasing numbers of
youth transitioning to adult healthcare. Poor transition can lead to high risks of morbidity and …

Background As young people with long-term conditions move from childhood to adulthood,
their health may deteriorate and their social participation may reduce.'Transition'is the …

Purpose The purpose of the study was to better understand the progressive development of
health self-management among adolescents and emerging adults (AEAs) with chronic …

Background Two-way interactive text messaging between patient and community health
workers (CHWs) through mobile phone SMS (short message service) text messaging is a …

Purpose Chronic health conditions impact nearly 40% of children in the United States,
necessitating parents/caregivers to entrust healthcare responsibilities to youth aging into …

Parents of chronically ill adolescents play a significant role during their child's transition and
transfer to adult care. Parents seek help and support, but appropriate initiatives are still …

Purpose Emerging adults with type 1 diabetes (T1D) are at increased risk for poor health
outcomes as they transition from paediatric to adult healthcare providers. This is in part due …