Wrestling with public input on an ethical analysis of scientific research

DO Martschenko, SL Callier, NA Garrison… - Hastings Center …, 2023 - Wiley Online Library
Bioethicists frequently call for empirical researchers to engage participants and community
members in their research, but don't themselves typically engage community members in …

Being directly responsive and accountable to human-research participants

DA Fleming, D Reynolds - The American Journal of Bioethics, 2008 - Taylor & Francis
In “Strangers at the Benchside: Research Ethics Consultation”, Cho and colleagues (2008)
present Stanford's “hybrid” approach to research ethics consultation. This consultation …

Science, social justice, and post-Belmont research ethics: Implications for regulation and environmental health science

R Morello-Frosch, P Brown - Routledge Handbook of Science …, 2014 - taylorfrancis.com
Research practices and regulation aimed at addressing environmental contamination have
shifted dramatically in academic and policy arenas, due to challenges from social …

Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?

CR Chapman, GP Quinn, HM Natri… - The American Journal …, 2023 - Taylor & Francis
Harms and risks to groups and third-parties can be significant in the context of research,
particularly in data-centric studies involving genomic, artificial intelligence, and/or machine …

What research ethics should learn from genomics and society research: lessons from the ELSI Congress of 2011

GE Henderson, ET Juengst, NMP King… - The Journal of Law …, 2012 - Wiley Online Library
Research on the ethical, legal, and social implications (ELSI) of human genomics has
devoted significant attention to the research ethics issues that arise from genomic science as …

Research impacting social contexts: the moral import of community-based participatory research

R Munoz, MD Fox - The American Journal of Bioethics, 2011 - Taylor & Francis
The social context of research matters, though Gordon and colleagues have failed to
connect all the dots. In “Social Contexts Influence Ethical Considerations of Research” …

[引用][C] Substantiating the social value requirement for research: An introduction

A Rid, SK Shah - Bioethics, 2017 - Wiley Online Library
For decades, ethical codes, guidelines and regulations for research involving humans have
held that research must have social value in order to be ethical. The idea was present in the …

When do genetic researchers have a duty to recontact study participants?

CH Wade, AL Kalfoglou - The American Journal of Bioethics, 2006 - Taylor & Francis
Accepting the proposal by Ravitsky and Wilfond (2006) to adopt a “result-evaluation
approach” would likely increase the number of studies that returned genetic test results to …

[HTML][HTML] The translational potential of research on the ethical, legal, and social implications of genomics

W Burke, P Appelbaum, L Dame, P Marshall… - Genetics in …, 2015 - Elsevier
Federally funded research on the ethical, legal, and social implications (ELSI) of genomics
includes a programmatic charge to consider policy-relevant questions and to communicate …

Beyond the IRB: Local service versus global oversight

M Havard, D Magnus - The American Journal of Bioethics, 2011 - Taylor & Francis
Institutional Review Boards (IRBs) are set up to address regulatory and compliance issues
involved in research, but not the broad social implications of research protocols. In fact, the …